CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20240 Imaging two dimensional speckle tracking echocardiography assessment date

The date related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20022 Imaging phosphorus magnetic resonance spectroscopy not leg assessment reason

The reason as related to not having scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20316 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain assessment anatomic site

The anatomic site in four chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C58646 Imaging phase partial Fourier ratio text

Text field for recording the partial Fourier ratio used

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C02498 Imaging scanner software version number

Version number of the imaging scanner software

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19604 Genetic test experimental validation type

Type of experimental validation for the basis of the evaluation

Exploratory Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C17955 Cardiovascular ventricular dysrhythmia episode total number

Total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C09590 Brief Psychiatric Rating Scale (BPRS) - somatic concern score

The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C20043 Mitochondrial disease special diet type

Select the type of specialized diet of the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19698 Imaging myelination type

The type of myelination in imaging

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20169 Mitochondrial disease current abdominal pain detail text

The free text field to specify additional details about the participant's/subject's present abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12892 Echocardiogram left ventricle wall motion abnormal indicator

Presence or absence of wall motion abnormalities in left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20298 Hospital admission hyperglycemia past year count

The count of the times the participant/subject was admitted to hospital for hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C11107 Pulmonary function peak expiratory flow result value

Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Mitochondrial Disease Mitochondrial Disease
C20129 Mitchondrial disease burp specific food drink cause text

The free text field to specify which specific foods or drinks cause participant's/subject's burping

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18881 Cardiovascular Holter exam episode count other text

The free-text field related to 'Cardiovascular Holter exam episode count type' specifying other text. Type of event for which the total number of episodes are recording during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C09598 Brief Psychiatric Rating Scale (BPRS) - depressive mood score

The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C20177 Mitochondrial disease prior abdominal pain frequency other text

The free text field to specify past frequency of participant's/subject's other abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20306 Medical office visit diabetes past year count

The count of times that the participant/subject was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C04502 ECG global result type

Result in qualitative terms of the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20137 Mitchondrial disease prior burp specific food drink cause text

This free text field to specify which specific foods or drinks caused participant's/subject's past burping

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C17506 Cardiac MRI result comment text

Results comments on the cardiac Magnetic Resonance Imaging results

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.