CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment result

The result in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result

The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20026 Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra assessment status

The status as related to ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20320 Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment anatomic site

The anatomic site in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20019 Imaging phosphorus magnetic resonance spectroscopy reproducibility indicator

The indicator related to reproducibility scan of phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20313 Imaging two dimensional speckle tracking echocardiography ventricle radial strain assessment result

The result of radial strain as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20027 Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra second assessment status

The status as related to second ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20321 Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment result

The result in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20020 Imaging phosphorus magnetic resonance spectroscopy leg laterality type

The type as related to leg laterality in phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20314 Imaging two dimensional speckle tracking echocardiography global strain chamber view type

The type of chamber view for global strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20028 Imaging phosphorus magnetic resonance spectroscopy exercise second duration

The duration in seconds of exercise bout completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C11105 Pulmonary function maximal inspiratory pressure (MIP) result value

Value, in cm H2O, representing the percentage of the predicted normal value of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles

Exploratory Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20021 Imaging phosphorus magnetic resonance spectroscopy right leg not assessment reason

The free-text field for reason as related to not assessing right leg in phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain assessment result

The result for global strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
Displaying 26 - 50 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.