CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19565 Blood Pressure measurement

Blood pressure measurement with systolic measurement over diastolic measurement

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01553 Blood pressure measurement position type

Indicator of the participant/subject's position during the blood pressure measurement

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19552 Blood specimen lactate measurement status

The status related to lactate level measured from the specimen's blood serum/plasma sample

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19554 Blood specimen lactate pyruvate ratio status

The status as related to lactate/pyruvate ratio level measured from the specimen's blood serum/plasma sample

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19553 Blood specimen pyruvate measurement status

The status as related to pyruvate level measured from the specimen's blood serum/plasma sample

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19581 BMI Percentile Value

The participant's/subject's BMI percentile for children over 2 years

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19622 BMI standard infant use type

Indicate whether WHO or CDC growth charts were used in BMI Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19621 BMI Z score

The number of standard deviations the calculated BMI of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19571 Body mass index category

Categorization of the participant/subject's body mass index

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19634 Body mass index pediatric value

Value of the participant/subject's body mass index, calculated from height and weight, age

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C11131 Body mass index value

Value of the participant/subject's body mass index, calculated from height and weight

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20007 Bone fracture text

The free-text field related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20008 Bone spine abnormal diagnosis indicator

The indicator related to having condition or abnormality of the spine or skeleton

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20009 Bone spine abnormal diagnosis text

The free-text field related to having condition or abnormality of the spine or skeleton

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C09591 Brief Psychiatric Rating Scale (BPRS) - anxiety score

The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09593 Brief Psychiatric Rating Scale (BPRS) - conceptual disorganization score

The score of the participant's/subject's conceptual disorganization, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09598 Brief Psychiatric Rating Scale (BPRS) - depressive mood score

The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09597 Brief Psychiatric Rating Scale (BPRS) - grandiosity score

The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C09601 Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score

The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
Displaying 26 - 50 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.