CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09373 Hamilton Depression Rating Scale (HDRS) - work activities difficulty indicator

Score for the participant/subject's difficulty, if any, with work and activities, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C19718 Dietary supplement indication reason

Reason the participant is taking the drug

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C20214 Mitochondrial disease poor appetite growth affect text

The free text field to specify affects of poor appetite on participant's/subject's growth

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21878 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score

Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20049 Mitochondrial disease problem start age category

The age category of the participant/subject when problems began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16179 Post-menopausal surgery date

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20097 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency

The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19722 Laboratory procedure glycosylated hemoglobin value

Subject/Particpants amount of Glycosylated Hemoglobin (Hemoglobin A1c) in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20222 Mitochondrial disease alternative medicine treatment improve GI problem text

The free text field to specify about what alternative medicines made the participant's/subject's GI problems better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C21898 Brief Test of Adult Cognition by Telephone (BTACT) - Total repitition count

Total Number of repetitions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20057 Mitochondrial disease vomit episode trigger indicator

Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19603 Genetic test clinical evaluation type

The type of basis for the evaluation of the clinical category of genetic test

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12488 Imaging subcortical cyst indicator

Indicator of whether subcortical cysts are found in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12905 Echocardiogram left ventricular mass index measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume, corrected for body surface area

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20007 Bone fracture text

The free-text field related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20105 Mitochondrial disease prior GERD heartburn mid-line chest pain esophogeal burning frequency

The frequency of the participant/subject's prior GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19730 Laboratory procedure microalbumin urine value

Subject/Participant's amount of microalbumin in urine

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease GI physician visit count

The count of GI doctors seen by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20065 Mitochondrial disease black stool indicator

Indicator of whether participant's/subject's stools are black

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19614 DNA change text

Text on DNA change

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12496 Imaging cerebellum abnormal indicator

Indicator as to whether the cerebellum appears normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12913 Echocardiogram quality study type

Quality of the echocardiogram study

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.