CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1818-C19548	C19548	Biomarker Analysis Indicator	Indicator that a biomarker analysis was performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12922	C12922	Cardiovascular Holter exam atrial dysrhythmia episode total number	Total number of episodes of a specific atrial dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C16174	C16174	Menopause indicator	Indicates whether participant/subject is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F0372-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20092	C20092	Mitochondrial disease migraine family history indicator	Indicator of whether participant/subject has a family history of migraines	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09376	C09376	Hamilton Depression Rating Scale (HDRS) - total score	Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20217	C20217	Mitochondrial disease medication GI problem help text	The free text field to specify about what medications helped the participant's/subject's GI problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20052	C20052	Mitochondrial disease symptom consistent indicator	Indicator of whether symptoms are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12869	C12869	Echocardiogram left ventricular trabeculation location type	Position of the trabeculation(s) in the left ventricular chamber as assessed by echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19557	C19557	Biomarker fibroblasts assessment type	Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12937	C12937	Cardiovascular Holter exam symptom description text	Description of symptoms documented during arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C19803	C19803	Dual X-ray absorptiometry scanner performed indicator	Indicator of DEXA scan performed	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F0372-C07108	C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20100	C20100	Mitochondrial disease GI detail text	The free text field to specify additional details about participant's/subject's GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20225	C20225	Mitochondrial disease surgery type	Select the type of surgery participant/subject had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20060	C20060	Mitochondrial disease vomit bright green yellow indicator	Indicator of whether participant's/subject's vomit is bright green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19694	C19694	Imaging development malformation corpus callosum type	The type of malformations in development in the corpus callosum (thick band of nerve fibers that divides the cerebrum into left and right hemisphere)	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12888	C12888	Echocardiogram right ventricle ejection fraction measurement	Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19567	C19567	Biomarker muscle histology assessment type	Type of biomarker(s) assessed from muscle histology	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12848	C12848	Cardiac MRI left ventricle non-compaction result	Result of the evaluation of the left ventricle for non-compaction as observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17959	C17959	Cardiovascular Holter exam longest run tachycardia episode value	Longest run of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20010	C20010	Dual X-ray absorptiometry scanner performed text	The free-text field related to DEXA scan performed	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F0803-C09594	C09594	Brief Psychiatric Rating Scale (BPRS) - guilt feeling score	The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.