CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20100 Mitochondrial disease GI detail text

The free text field to specify additional details about participant's/subject's GERD, heartburn, mid-line chest pain, esophageal burning symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20228 Mitochondrial disease GI clinical trial participate indicator

Indicator of whether participant/subject would participate in a clinical trial

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20099 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn wake indicator

Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning wakes participant/subject from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20097 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency

The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20098 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20094 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status

The status present or prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20148 Mitochondrial disease food stuck esophagus indicator

Indicator of whether participant's/subject's gets food stuck in their esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20149 Mitochondrial disease food stuck esophagus anatomic site

The anatomic site of food getting stuck in the participant/subject's esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20153 Mitochondrial disease feed difficult text

The free text field to give detailed comments about participant's/subject's feeding difficulties

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20163 Mitochondrial disease event frequent before abdominal pain type

The type of event frequently experienced by the particpant/subject before abdominal pain begins

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20152 Mitochondrial disease esophagus diagnosis ever type

The type of esophageal disorder with which the participant/subject has ever been diagnosed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20038 Mitochondrial disease eat type

Select the type of ways that participant/subject eats

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20040 Mitochondrial disease eat reason text

The free text field to specify why participant/subject eats that way

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20031 Mitochondrial disease DNA mutation type

The type of DNA mutation (nuclear or mitochondrial) present in the participant/subject's genetic diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20033 Mitochondrial disease DNA mutation text

The free text field to specify the mitochondrial disease mitochondrial DNA mutation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20143 Mitochondrial disease difficulty swallow change over time indicator

Indicator of whether participant's/subject's difficulty swallowing changes over time

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20047 Mitochondrial disease dietary other restriction text

The free text field to specify whether participant/subject have other dietary retrictions

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20029 Mitochondrial disease diagnosis text

The free-text field specifying the mitochondrial disease diagnosis that is present

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20144 Mitochondrial disease details swallow problem text

The free text field to specify additional details about participant's/subject's swallowing problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20115 Mitochondrial disease details oral regurgitation text

The free text field to specify additional details about participant's/subject's oral regurgitation symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20233 Mitochondrial disease delay treatment GI problem indicator

Indicator of whether participant/subject delayed treatment of GI problem

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20210 Mitochondrial disease defecation other treatment text

The free text field to specify about the participant's/subject's use of other treatment to defecate

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20050 Mitochondrial disease current vomit episode trigger present symptom onset type

The type triggers participant/subject may have had when symptoms began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20068 Mitochondrial disease current vomit detail text

The free text field to specify additional details about participant's/subject's current vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20110 Mitochondrial disease current oral regurgitation onset age category

The category of participant/subject's age at onset of current oral regurgitation episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.