CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 176 - 200 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12498 Imaging white matter T2 abnormal indicator

Indicator of whether the white matter appears normal or abnormal on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20220 Mitochondrial disease alternative medicine type

Select the alternative medical treatments tried by the participant/subject.

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09932 World Health Organization Quality of Life (WHOQOL-BREF) - physical pain prevent work scale

Scale used to assess the extent to which pain prevents the participant from doing what needs to be done, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C10599 Parameter map calculation type

Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19601 Genetic test tissue type

Type of tissue tested.

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20180 Mitochondrial disease prior abdominal pain trigger type

The type of trigger of the participant's/subject's prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured.

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20309 Dietician consult past year count

The count of times that the participant/subject consulted a dietician in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50445 Child and Adolescent Scale of Environment (CASE) - Problem comment other text

The free-text field describing any other problems or comments about the child, as part of the Child Adolescent Scale of Environment (CASE)

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C20002 ECG right bundle branch block status

Status of right bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C51735 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 13:8 observation text

Text describing the observations made on the subject's sketch for the age norm of 13 years and 8 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Mitochondrial Disease Mitochondrial Disease
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT).

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C12935 Cardiovascular Holter exam ventricular contraction morphology type

Morphology of the ventricular dysrhythmia

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C51695 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 4:1 observation text

Text describing the observations made on the subject's sketch for the age norm of 4 years and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C13095 American National Adult Reading Test (AmNART) - pronounce quadruped indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "quadruped".

Supplemental American National Adult Reading Test (AmNART) Mitochondrial Disease Mitochondrial Disease
C11533 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty writing frequency score

Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R).

Supplemental Cambridge Behavioral Inventory - Revised Mitochondrial Disease Mitochondrial Disease
C12506 Imaging eye abnormality type

The type of eye abnormalities

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20063 Mitochondrial disease vomit color blood category

The category of color of the blood present in participant's/subject's vomit

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09940 World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale

Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C18708 Imaging pulse sequence other text

The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19611 References text

List of references.

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20188 Mitochondrial disease bloat abdominal distension current prior status

The status, present or past, of bloating or abdominal distension experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19571 Body mass index category

Categorization of the participant/subject's body mass index.

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.