CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 903

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18880	Cardiovascular Holter exam atrial dysrhythmia other text	The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type' specifying other text.Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
C10843	Imaging analysis software version number	The version number of the software used for quantitative analysis of the imaging study	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
C18858	Imaging pons abnormality other text	The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C09373	Hamilton Depression Rating Scale (HDRS) - work activities difficulty indicator	Score for the participant/subject's difficulty, if any, with work and activities, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
C20182	Mitochondrial disease prior abdominal pain disrupt activity indicator	Indicator of whether participant's/subject's prior abdominal pain disrupted activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C12487	Imaging other cortical abnormality site type	The anatomical site(s) of the other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
C20142	Mitochondrial disease swallow problem frequency	The frequency with which the participant/subject has problems swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20271	Insulin bolus total daily unit count	The daily total of bolus or short acting insulin used by the participant/subject, in units	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C19623	Head circumference percentile value	The participant/subject's head circumference percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C12899	Echocardiogram right ventricle end diastolic volume index measurement	Calculated from end diastolic volume over body surface area - right ventricle	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurements of the dimensions of the left atrial antero - posterior measured by the echocardiogram	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C20190	Mitochondrial disease bloat abdominal distension time type	The type, as time of day, at which the abdominal bloating/distension is worse for the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C02495	Imaging scanner strength value	Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
C12495	Imaging pons abnormality type	The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG) administration	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
C20150	Mitochondrial disease remove food pill esophagus indicator	Indicator of whether participant/subject has food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20279	Emergency room use hypoglycemia past year count	The count of the times the participant/subject used the emergency room for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C19549	Biomarker Sample Assessment Type	Type of sample obtained from specimen to assess the biomarker	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
C10743	Echocardiogram degree of tricuspid regurgitation status	Assessment with echocardiography of whether there is the failure of the heart's tricuspid valve to close properly during systole	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C20198	Mitochondrial disease prior abdominal distension cause air stool reason	The reason the participant/subject thought the belly was distended in prior episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C12916	Cardiovascular Holter exam stop date time	Date (and time, if applicable and known) the Holter examination of the participant/subject stopped	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
C20032	Mitochondrial disease nuclear mutation text	The free text field to specify the mitochondrial disease nuclear DNA mutation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 176 - 200 of 903

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.