CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1526 - 1550 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60003 Heart trial start rate

Heart rate, in beats per minute (BPM), at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12803 Gene variant mutation implications confirmed mRNA analysis indicator

Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59707 Hypoglycemia history indicator

Indicator of whether the participant has a history of hypoglycemia

 Supplemental-Highly Recommended Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C17797 Imaging contrast agent injection rate

Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12864 Echocardiogram left atrial dimension measurement

Measurement of the left atrial dimension obtained by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C60011 Work trial other timepoint elapsed time minute count

Count in elapsed minutes of the work trial at which data is collected for the other timepoint

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59971 Oxygen end tidal partial pressure oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C10839 Imaging volume count

The number of volume data sets acquired during the imaging scan

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12872 Echocardiogram mitral valve stenosis degree status

Status of the degree of mitral valve stenosis as assessed by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) False Mitochondrial Disease Mitochondrial Disease
C60019 Tidal volume body temperature pressure saturate trial other timepoint measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C17891 Gene additional variants unknown significance text

The free-text field about additional variants in other genes of unknown significance

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59941 Heart rate submaximal absolute trial measurement

Measurement, in beats per minute (BPM), of the heart rate during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59901 Speed submaximal absolute trial measurement

Measurement of speed, in revolutions per minute (RPM), during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60094 Imaging arterial spin labeling phase type

Type of arterial spin labeling phase used in imaging

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12786 Allele identifier name

Name that identifies which allele the associated data describe

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59949 Oxygen uptake heart rate oxygen uptake peak measure ratio value

Value of the measured ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when peak VO2 was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59909 Respiration submaximal absolute trial rate

Rate of respiration (RR), in breaths per minute, during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12796 Gene targeted variant mutational analysis indicator

Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59957 Carbon dioxide ventilatory equivalent submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of (1) the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle on the echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C59826 Auditory brainstem response stimulus level measurement

Measurement of the stimulus used for auditory brainstem response (ABR) testing

 Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 1526 - 1550 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.