CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59879	C59879	Maximum sway excursion right position percent value	Value of the percent of maximum sway excursion in a right position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20258	C20258	Medication reduce blood sugar prior diagnosis type	The type of the medication to reduce blood sugar levels taken by the participant prior to diagnosis of the condition/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C59766	C59766	Medication diabetes combination status	Status related to the use of combination medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59887	C59887	Vestibular head impulse test overt saccades count	Count of overt saccades encountered during vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59847	C59847	Positional test supine status	Status of the participant's eye movement in a supine position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52345	C52345	12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale	Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C59774	C59774	Hypoglycemia cause indicator	Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54260	C54260	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type	Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59855	C59855	Peak slow-phase eye velocity measurement	Measurement of the peak slow-phase eye velocity (PSEV)	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52353	C52353	12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score	Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54268	C54268	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score	Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59863	C59863	Ocular vestibular-evoked myogenic potential P1 latency measurement	Measurement of the first positive peak (P1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54276	C54276	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score	Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59871	C59871	Vestibulo-ocular reflex phase measurement	Measurement of the vestibulo-ocular reflex (VOR) phase captured during testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20249	C20249	Family history diabetes relative type	Relationship to the participant of the family member with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54284	C54284	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20298	C20298	Hospital admission hyperglycemia past year count	The count of the times the participant was admitted to hospital for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20313	C20313	Imaging two dimensional speckle tracking echocardiography left ventricle radial strain value	Value, as a percentage, of radial strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20306	C20306	Medical office visit diabetes past year count	The count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20265	C20265	Hypoglycemia severe loss consciousness seizure past year count	The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20321	C20321	Imaging two dimensional speckle tracking echocardiography long axis segmental strain value	Value of segmental strain in the long axis (three-chamber) view measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20005	C20005	Hypoglycemia symptom diagnosis text	The free-text field related to 'Hypoglycemia diagnosis type', specifying the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.