CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60052 Exercise test date

Date on which the exercise test was performed

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C57113 Start recovery time

Time of the start of recovery

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59935 Carbon dioxide output submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of carbon dioxide output (VCO2) during the Submaximal Absolute Trial to VCO2 at the attainment of peak oxygen uptake

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59895 Work submaximal absolute trial measurement

Measurement of work, in watts, being expended instantaneously during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59943 Heart rate oxygen uptake peak measurement

Measurement, in beats per minute (BPM), of the heart rate when peak oxygen uptake (VO2) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59801 Acoustic reflex decay status

Status of the reflex decay in acoustic reflex testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59903 Speed oxygen uptake peak measurement

Measurement of instantaneous speed, in revolutions per minute (RPM), when peak oxygen uptake (VO2) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60347 Step average daily count

Count of the average number of steps taken by the participant daily

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60093 Imaging arterial spin labeling acquisition type

Type of arterial spin labeling used in imaging acquisition

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C07106 Center for Epidemiologic Studies-Depression Scale (CES-D) - enjoy life indicator

Indicates how often the subject felt like he/she enjoyed life in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C59951 Oxygen uptake heart rate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of (1) the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59911 Respiration oxygen uptake peak measure rate

Rate of respiration (RR), in breaths per minute, measured at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59959 Oxygen ventilatory equivalent submaximal absolute trial value

Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59919 Oxygen uptake submaximal absolute trial unit mass measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60178 Imaging multivoxel spectroscopy indicator

Indicator of whether multivoxel spectroscopy imaging was done

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59825 Auditory brainstem response stimulus type

Type of stimulus used for auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.