CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12875 Echocardiogram mitral valve prolapse indicator

Assessment with echocardiography of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C17957 Cardiovascular Holter exam premature ventricular contraction number

Number or premature ventricular contractions per 24 hours

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant/subject of the family member with diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Mitochondrial Disease Mitochondrial Disease
C20173 Mitochondrial disease prior abdominal pain reason

The reason the participant/subject thinks they or their child experienced prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C11112 Pulmonary function maximal voluntary ventilation (MVV) result value

Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C19597 Genetic test trinucleotide repeat analysis tissue type

Type of tissue tested in the trinucleotide analysis test for genetics

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C17961 Cardiovascular aortic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the aortic valve

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20133 Mitochondrial disease prior burp stopped specific text

The free text field to specify when participant's/subject's past burping stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12894 Echocardiogram right ventricle diastolic internal dimension (RVIDd) measurement

Right ventricular end - diastolic internal dimension (RVIDd) measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C10724 Echocardiogram performed date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12478 Imaging cortex-pachygyria indicator

Indicator of whether cortex-pachygyria are found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12840 Cardiac MRI ventricle end systolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C19691 Imaging deep grey nuclei anatomic site

The anatomic site in the deep grey nuclei imaging

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20005 Hypoglycemia symptom diagnosis text

The free-text field to specify the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C18857 Imaging brainstem abnormality other text

The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20103 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop reason

The free text field to specify when participant's/subject's past GERD heartburn mid-line chest pain esophageal burning stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20305 Hospital admission not diabetes related past year total day count

The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons not related to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19562 Biomarker lymphocyte assessment type

Type of biomarker(s) assessed from lymphocytes samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20228 Mitochondrial disease GI clinical trial participate indicator

Indicator of whether participant/subject would participate in a clinical trial

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12486 Imaging other cortical abnormality type

The type of other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20063 Mitochondrial disease vomit color blood category

The category of color of the blood present in participant's/subject's vomit

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20264 Diabetic ketoacidosis emergency past year count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.