CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 903

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12875	Echocardiogram mitral valve prolapse indicator	Assessment with echocardiography of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C17957	Cardiovascular Holter exam premature ventricular contraction number	Number or premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
C20249	Family history diabetes relative type	Relationship to the participant/subject of the family member with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Mitochondrial Disease	Mitochondrial Disease
C20173	Mitochondrial disease prior abdominal pain reason	The reason the participant/subject thinks they or their child experienced prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C11112	Pulmonary function maximal voluntary ventilation (MVV) result value	Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
C19597	Genetic test trinucleotide repeat analysis tissue type	Type of tissue tested in the trinucleotide analysis test for genetics	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C17961	Cardiovascular aortic stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the aortic valve	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C20133	Mitochondrial disease prior burp stopped specific text	The free text field to specify when participant's/subject's past burping stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C12894	Echocardiogram right ventricle diastolic internal dimension (RVIDd) measurement	Right ventricular end - diastolic internal dimension (RVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C10724	Echocardiogram performed date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C12478	Imaging cortex-pachygyria indicator	Indicator of whether cortex-pachygyria are found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C20055	Mitochondrial disease vomit episode intensity type	The type of intensity of the participant/subject's episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C19691	Imaging deep grey nuclei anatomic site	The anatomic site in the deep grey nuclei imaging	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
C20005	Hypoglycemia symptom diagnosis text	The free-text field to specify the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C18857	Imaging brainstem abnormality other text	The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C20103	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop reason	The free text field to specify when participant's/subject's past GERD heartburn mid-line chest pain esophageal burning stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20305	Hospital admission not diabetes related past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons not related to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19562	Biomarker lymphocyte assessment type	Type of biomarker(s) assessed from lymphocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
C20228	Mitochondrial disease GI clinical trial participate indicator	Indicator of whether participant/subject would participate in a clinical trial	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C12486	Imaging other cortical abnormality type	The type of other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C20063	Mitochondrial disease vomit color blood category	The category of color of the blood present in participant's/subject's vomit	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20264	Diabetic ketoacidosis emergency past year count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 151 - 175 of 903

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.