CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C07109	Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator	Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07092	Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator	Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07101	Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator	Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07095	Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator	Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
C10980	Childbearing potential indicator	Indicator of whether the participant/subject is of childbearing potential	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20284	Diabetes 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20283	Diabetes 911 call past year indicator	The indicator of whether the participant/subject has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20242	Diabetes clinical symptom presentation diagnosis type	Clinical symptoms participant/ subject showed at presentation when diagnosed with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20241	Diabetes diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20250	Diabetes family history medical condition indicator	Indicator of whether a close family member of the participant/subject has had a history of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant/subject was first diagnosed with diabetes mellitus	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20244	Diabetes insulin receive diagnosis indicator	The indicator of whether the participant/subject received insulin at the time the diabetes was diagnosed	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20243	Diabetes laboratory diagnosis type	Laboratory indications present at diagnosis of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20287	Diabetes related other 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20264	Diabetic ketoacidosis emergency past year count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20260	Diabetic ketoacidosis emergency past year indicator	The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20263	Diabetic ketoacidosis emergency post diagnosis diabetes count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the time since their diagnosis of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20259	Diabetic ketoacidosis emergency post diagnosis diabetes indicator	The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C18241	Diagnosis age type	Type of age of the participant/subject when initially diagnosed with disease/disorder	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19720	Dietary supplement administered count	Numerical number of how many times the supplement was taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 151 - 175 of 903

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.