CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1476 - 1500 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20302 Hospital admission hypoglycemia past year total day count

The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59860 Cervical vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20261 Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator

The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54260 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type

Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C06358 Diabetes mellitus type

Type of diabetes mellitus

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59868 Angular rotation frequency

Frequency of angular rotation used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing (RVT)

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant, in units

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59829 Auditory steady state response threshold measurement

Measurement of the hearing threshold obtained by auditory steady state response (ASSR)

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20248 Imaging scanner manufacturer name text

The free-text field related to name of manufacturer of imaging scanner

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20318 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain anatomic site

Anatomic site identifying the myocardial segment in the two chamber view measured for segmental strain using two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54246 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59771 Medication hypoglycemia type

Type of medication taken for hypoglycemia

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52354 12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score

Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54269 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus visuospatial constructional difference score

Difference score calculated as a subtraction of Visuospatial/Constructional index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59877 Maximum sway excursion forward position percent value

Value of the percent of maximum sway excursion in a forward position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant used the emergency room for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C19670 Family history diagnosis age unknown status

Status related to whether the participant knows the age of the relative when diagnosed

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54277 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score

Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59749 Family history insulin current use indicator

Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59885 Vestibular head impulse test type

Type of vestibular head impulse testing performed

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20287 911 call diabetes related other past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20250 Family history diabetes medical condition indicator

Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54285 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Delayed memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Delayed Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
Displaying 1476 - 1500 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.