CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1476 - 1500 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C60184 Muscle group type

Type of muscle group

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C60185 Muscle group type other text

The free text field related to 'Muscle group type', specifying other text. Type of muscle group

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C59841 Ocular motor assessment horizontal status

Status of the participant's horizontal eye movement during ocular motor assessment

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59845 Ocular motor assessment spontaneous test eye close status

Status of the participant's spontaneous ocular motor testing with eyes close

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59844 Ocular motor assessment spontaneous test eye open status

Status of the participant's spontaneous ocular motor testing with eyes open

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59840 Ocular motor assessment type

Type of ocular motor assessment performed

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59842 Ocular motor assessment vertical status

Status of the participant's vertical eye movement during ocular motor assessment

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59864 Ocular vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59863 Ocular vestibular-evoked myogenic potential P1 latency measurement

Measurement of the first positive peak (P1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59865 Ocular vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59866 Ocular vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59843 Optokinetic reflex status

Status of the participant's optokinetic reflex

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60258 Organ donation register indicator

Indicator of whether the participant has registered for organ donation

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60259 Organ donation repository name

Name of repository to which the participant registered for organ donation

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60225 Organoid type

Type of organoid

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60226 Organoid type other text

The free-text field related to 'Organoid type', specifying other text. Type of organoid

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C58374 Other surgery performed text

Free-text field to specify other surgery(ies) performed on participant

 Supplemental Medical History False Mitochondrial Disease Mitochondrial Disease
C59821 Otoacoustic emission absent frequency text

Free-text field listing the frequencies with absent otoacoustic emissions (OAEs)

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59822 Otoacoustic emission artifact frequency text

Free-text field listing the frequencies with artifact otoacoustic emissions (OAEs)

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59820 Otoacoustic emission present frequency text

Free-text field listing the frequencies with present otoacoustic emissions (OAEs)

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59818 Otoacoustic emission test perform status

Status of whether otoacoustic emissions testing was performed

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 1476 - 1500 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.