CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C60019	C60019	Tidal volume body temperature pressure saturate trial other timepoint measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59979	C59979	Blood pressure diastolic oxygen uptake peak measurement	Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12891	C12891	Echocardiogram right ventricle function status	Status of right ventricle function on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10839	C10839	Imaging volume count	The number of volume data sets acquired during the imaging scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60027	C60027	Oxygen uptake submaximal absolute trial end measurement	Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59987	C59987	Rate pressure product oxygen uptake peak measure predict ratio value	Value of the ratio of the rate pressure product at the attainment of measured peak oxygen uptake (VO2), to the rate pressure product for predicted peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59844	C59844	Ocular motor assessment spontaneous test eye open status	Status of the participant's spontaneous ocular motor testing with eyes open	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19723	C19723	Laboratory procedure anti-pancreatic autoantibodies value	Value of the amount of anti-pancreatic autoantibodies in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C59015	C59015	Imaging unsuppress spectrum indicator	Indicator of whether an unsuppressed spectrum was captured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurement of the left atrial antero-posterior dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60035	C60035	Blood oxygen saturation submaximal absolute trial end measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56171	C56171	Rest work measurement	Measurement of work, in watts, that the participant generates at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59995	C59995	Leg fatigue ventilatory anaerobic threshold Borg scale	Scale value of leg fatigue using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59957	C59957	Carbon dioxide ventilatory equivalent submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of (1) the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59917	C59917	Gas exhale volume submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of the volume of gas exhaled (VE) during the Submaximal Absolute Trial to the VE at the time oxygen uptake (VO2) peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07107	C07107	Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator	Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59965	C59965	Carbon dioxide end tidal partial pressure submaximal absolute trial measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12914	C12914	Echocardiogram result status	Status of the global results of the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59823	C59823	Auditory brainstem response test perform status	Status of whether auditory brainstem response (ABR) testing was performed	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60267	C60267	Genetic test prevision software name	Name of the prevision software used in genetic testing	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59925	C59925	Oxygen uptake submaximal absolute trial measurement	Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.