CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C56213	C56213	Rest carbon dioxide output measurement	Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60001	C60001	Carbon dioxide trial start measurement	Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56261	C56261	Rest systolic pressure measurement	Measurement, in millimeters of mercury (mmHg), of systolic blood pressure at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60009	C60009	Blood pressure diastolic trial start measurement	Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12818	C12818	Gene second allele identical indicator	Indicator of whether allele #2 is identical to allele #1	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59969	C59969	Oxygen end tidal partial pressure submaximal absolute trial measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59827	C59827	Auditory brainstem response threshold measurement	Measurement of the hearing threshold obtained by auditory brainstem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12870	C12870	Echocardiogram pulmonic valve stenosis degree status	Status of the degree of pulmonic valve stenosis as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60017	C60017	Heart trial other timepoint rate	Heart rate, in beats per minute (BPM), at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59977	C59977	Blood pressure diastolic submaximal absolute trial measurement	Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C20247	C20247	Imaging scanner model name text	The free-text field related to name of model of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11913	C11913	Modified Fatigue Impact Scale (MFIS) - forgetful score	Scale for having been forgetful as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59939	C59939	Respiratory exchange ratio oxygen uptake peak value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the attainment of peak VO2 during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59797	C59797	Acoustic reflex test perform status	Status of whether acoustic reflex testing was performed	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59899	C59899	Work submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of the work (in watts) generated during the Submaximal Absolute Trial to the instantaneous work (in watts) being generated at the time oxygen uptake (VO2) peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60089	C60089	Imaging post processing analysis method software leakage correction indicator	Indicator of whether software-based leakage correction method was used for imaging post processing and analysis	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11921	C11921	Modified Fatigue Impact Scale (MFIS) - muscle weak score	Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59947	C59947	Oxygen uptake heart rate submaximal absolute trial ratio value	Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59907	C59907	Tidal volume body temperature pressure saturate oxygen uptake peak measurement	Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60097	C60097	Imaging post processing analysis method quantitative indicator	Indicator of whether quantitative method was used for imaging post processing and analysis	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.