CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20306	C20306	Medical office visit diabetes past year count	The count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C60185	C60185	Muscle group type other text	The free text field related to 'Muscle group type', specifying other text. Type of muscle group	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20265	C20265	Hypoglycemia severe loss consciousness seizure past year count	The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20313	C20313	Imaging two dimensional speckle tracking echocardiography left ventricle radial strain value	Value, as a percentage, of radial strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20005	C20005	Hypoglycemia symptom diagnosis text	The free-text field related to 'Hypoglycemia diagnosis type', specifying the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20274	C20274	Insulin miss dose past two week count	The count of insulin doses missed by the participant in the past two weeks	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20321	C20321	Imaging two dimensional speckle tracking echocardiography long axis segmental strain value	Value of segmental strain in the long axis (three-chamber) view measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59744	C59744	Genetic test diabetes result text	Free-text field related to the results of diabetes genetic testing	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20282	C20282	Emergency room use not diabetes related past year count	The count of the times the participant used the emergency room for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59752	C59752	Insulin bolus current use status	Status indicating whether the participant currently uses bolus or short acting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20290	C20290	Urgent care clinic use past year count	The count of the times the participant used an after-hours or urgent care clinic other than the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59760	C59760	Medication diabetes sulfonylurea status	Status related to the use of sulfonylurea medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54246	C54246	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20298	C20298	Hospital admission hyperglycemia past year count	The count of the times the participant was admitted to hospital for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C19247	C19247	Subject ID	Subject identification ID	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3126-C59833	C59833	Electrocochleography type	Type of electrocochleography test	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59880	C59880	Maximum sway excursion backward right percent value	Value of the percent of maximum sway excursion in a backward right position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52346	C52346	12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale	Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2731-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54261	C54261	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score	Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C59767	C59767	Medical office visit diabetes past year count unknown status	Status related to count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59888	C59888	Vestibular head impulse test vertical canal plane type	Type of planes for the vertical canals in vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52354	C52354	12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score	Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59848	C59848	Positional test head right status	Status of the participant's eye movement in a head right facing position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54269	C54269	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus visuospatial constructional difference score	Difference score calculated as a subtraction of Visuospatial/Constructional index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.