CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20198	C20198	Mitochondrial disease prior abdominal distension cause reason type	Type of reason for past abdominal distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20175	C20175	Mitochondrial disease prior abdominal pain anatomic site	Anatomic site where participant's past abdominal pain was located	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20186	C20186	Mitochondrial disease prior abdominal pain detail text	The free-text field to specify additional details about the participant's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20182	C20182	Mitochondrial disease prior abdominal pain disrupt activity indicator	Indicator of whether the participant's prior abdominal pain disrupted activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20179	C20179	Mitochondrial disease prior abdominal pain duration detail text	The free-text field to specify additional details about participant's past abdominal pain duration	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20178	C20178	Mitochondrial disease prior abdominal pain duration type	Type of duration of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20176	C20176	Mitochondrial disease prior abdominal pain frequency type	Type of frequency with which the participant had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20177	C20177	Mitochondrial disease prior abdominal pain frequency type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain frequency type', specifying other text. Type of frequency with which the participant had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20184	C20184	Mitochondrial disease prior abdominal pain improve text	The free-text field to specify what made the participant's prior abdominal pain better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20170	C20170	Mitochondrial disease prior abdominal pain onset age category	Category of the participant's age at the onset of prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20173	C20173	Mitochondrial disease prior abdominal pain reason	Reason describing the past indication that the participant experienced abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20174	C20174	Mitochondrial disease prior abdominal pain reason detail text	The free-text field to specify additional details about reasons indicating the participant's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60318	C60318	Mitochondrial disease prior abdominal pain reason other text	The free-text field related to 'Mitochondrial disease prior abdominal pain reason', specifying other text. Reason describing the past indication that the participant experienced abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20171	C20171	Mitochondrial disease prior abdominal pain stop age category	Category of the participant's age at the end of prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20172	C20172	Mitochondrial disease prior abdominal pain stop text	The free-text field to specify what stopped participant's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20181	C20181	Mitochondrial disease prior abdominal pain trigger detail text	The free-text field to specify additional details about participant's past abdominal pain triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20180	C20180	Mitochondrial disease prior abdominal pain trigger type	Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60319	C60319	Mitochondrial disease prior abdominal pain trigger type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain trigger type', specifying other text. Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20183	C20183	Mitochondrial disease prior abdominal pain wake indicator	Indicator of whether prior abdominal pain woke the participant from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20185	C20185	Mitochondrial disease prior abdominal pain worsen text	The free-text field to specify what made the participant's prior abdominal pain worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20199	C20199	Mitochondrial disease prior bloat abdominal distension detail text	The free-text field to specify additional details about the participant's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20194	C20194	Mitochondrial disease prior bloat abdominal distension onset age category	Category of the participant's age at the onset of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20195	C20195	Mitochondrial disease prior bloat abdominal distension stop age category	Category of the participant's age at the end of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20196	C20196	Mitochondrial disease prior bloat abdominal distension stop text	The free-text field to specify what stopped participant's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20197	C20197	Mitochondrial disease prior bloat abdominal distension worse time type	Type, as time of day, at which prior abdominal bloating/distension was worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.