CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60329	C60329	Mitochondrial disease recurrent acute pancreatitis indicator	Indicator of whether the participant had recurrent acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20131	C20131	Mitochondrial disease prior burp onset age category	Category of the participant's age at the onset of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18776	C18776	ECG atrial arrhythmia type other text	The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54632	C54632	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60289	C60289	Mitochondrial disease swallow difficult onset age category	Category of the participant's age at the onset of difficulty with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20090	C20090	Mitochondrial disease vomit diagnosis cyclic indicator	Indicator of whether the participant has a cyclic vomiting diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12919	C12919	Cardiovascular Holter exam atrial dysrhythmia type	Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56421	C56421	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator	The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F0806-C09354	C09354	Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score	The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60136	C60136	Dual X-ray absorptiometry R2 lateral distal femur bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C14639	C14639	Ambulatory status	Status that reflects the participant's ability to walk	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60337	C60337	Mitochondrial disease genetic tests pancreas result text	The free-text field related to the participant's genetic test results	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20143	C20143	Mitochondrial disease swallow difficult change over time indicator	Indicator of whether the participant's difficulty swallowing has changed over time	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60346	C60346	Wearable exercise technology recording duration	Duration in days of the wearable exercise technology recording	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19548	C19548	Biomarker Analysis Indicator	Indicator of whether a biomarker analysis was performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60297	C60297	Mitochondrial disease swallow pain consistent indicator	Indicator of whether the participant's swallowing pain has been consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20098	C20098	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether current GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12936	C12936	Cardiovascular Holter exam symptomatic arrhythmia indicator	Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56429	C56429	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score	The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60104	C60104	Dual X-ray absorptiometry whole body less head bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the whole body not including the head	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20151	C20151	Mitochondrial disease remove food pill esophagus count	The number of times participant has had food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19564	C19564	Biomarker muscle biochemistry assessment type	Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60305	C60305	Mitochondrial disease cough eat indicator	Indicator of whether the participant coughs while eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.