CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 903
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20096 Mitochondrial disease GI symptom consistent day to day indicator

Indicator of whether symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18169 Triglycerides value

Triglycerides measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20221 Mitochondrial disease alternative medicine treatment other text

The free text field to specify other alternative medicine used to treatment

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18858 Imaging pons abnormality other text

The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21897 Brief Test of Adult Cognition by Telephone (BTACT) - Total intrusion count

Total Number of intrusions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20056 Mitochondrial disease vomit time of day category

The time-of-day category of when the participant/subject usually vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19602 Genetic test mutation clinical category

The category for the type of mutation in clinical setting

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12904 Echocardiogram left ventricular mass measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20104 Mitochondrial disease prior GI symptom consistent day to day indicator

Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy value

Subject/Participant's amount of vitamin D twenty five hydroxy in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time GI symptom occur prior diagnosis text

The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease vomit blood clot indicator

Indicator of whether participant's/subject's vomit has blood clots

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19612 Genetic result type

Type of genetic results

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12912 Echocardiogram pericardial effusion abnormal indicator

Whether there is pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20112 Mitochondrial disease oral regurgitation frequency

The frequency with which participant/subject has oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20237 Mitochondrial disease Munchausen by proxy syndrome health care professional setting type

Select the setting when confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease vomit symptom consistent indicator

Indicator of whether past symptoms were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.