CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19581 BMI Percentile Value

Value of the participant's BMI percentile for children over 2 years

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16171 Menstrual period first occurrence age value

Youngest age the participant had a menstrual period, otherwise known as the age of menarche

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C21895 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score

Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59157 Genetic study data analysis category type

Type of analysis category data expected for the genetics study

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59741 Bone fracture age value

Value for participant's age at the time of fracture

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20225 Mitochondrial disease surgery type

Select the type of surgery participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59839 Left eye vision status

Status of the participant's vision using the left eye

Supplemental Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20053 Mitochondrial disease current vomit frequency type

Type of frequency with which the participant currently has episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19619 Weight length Z Score

The number of standard deviations the measured weight/length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16180 Hormone-related syndrome indicator

Indicator of whether the participant has known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20184 Mitochondrial disease prior abdominal pain improve text

The free-text field to specify what made the participant's prior abdominal pain better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18146 Laboratory procedure HDL cholesterol measurement

Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Mitochondrial Disease Mitochondrial Disease
C20233 Mitochondrial disease gastrointestinal problem not believe delay treatment indicator

Indicator of whether the participant delayed treatment of GI problem due to fear of not being believed about symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20061 Mitochondrial disease current vomit green yellow frequency type

Type of frequency with which the participant's vomit is green or yellow in current episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59700 Pregnancy self or contribute sperm status

Status related to whether the participant has ever been pregnant or contributed sperm to a pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20192 Mitochondrial disease swallow air indicator

Indicator of whether the participant is an air swallower

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19726 Laboratory procedure fasting insulin measurement

Measurement of the amount of insulin in the participant's blood when fasting

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C60255 Diagnosis primary mitochondrial disease support sign status

Status of the sign supportive of primary mitochondrial disease diagnosis

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C17958 Cardiovascular Holter exam fastest run tachycardia episode value

Value of the heart rate during the fastest run of a tachycardia episode

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C20329 Mitochondrial disease prior special diet indicator

Indicator of whether the participant has been on a restricted/specialized diet in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20069 Mitochondrial disease prior vomit onset age category

Category of the participant's age at the onset of prior vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59717 Medication steroid inhaler current indicator

Indicator of whether the participant is taking any steroids by inhaler

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
Displaying 901 - 925 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.