CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09597 Brief Psychiatric Rating Scale (BPRS) - grandiosity score

The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C60115 Dual X-ray absorptiometry total hip bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the total hip

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20163 Mitochondrial disease current abdominal pain trigger type

Type of trigger of the participant's current abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60228 Clinic assessment type other text

The free-text field related to 'Clinic assessment type', specifying other text. Type of clinical assessment performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60316 Mitochondrial disease fiberoptic endoscopic evaluation of swallowing indicator

Indicator of whether the participant has had a fiberoptic endoscopic evaluation of swallowing (FEES) procedure

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C21849 Brief Test of Adult Cognition by Telephone (BTACT) - Median latency time lapse millisecond measurement

Median latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59078 DNA known variant status

Status of known variant(s) in participant's DNA

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C04505 ECG left ventricular hypertrophy status

Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C60278 Mitochondrial disease prior special diet affect symptom text

The free-text field to specify whether the prior specialized diet affected participant's symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20079 Mitochondrial disease prior vomit before problem type

Types of problems that frequently occur before vomiting during participant's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59727 Medication bisphosphonate past indicator

Indicator of whether the participant has ever taken a bisphosphonate (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate) in the past

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20211 Mitochondrial disease prior bowel movement other treatment text

The free-text field to specify if the participant used other treatments for to help with bowel movements in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20037 Mitochondrial disease problem type

Type of problems that participant has

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C09372 Hamilton Depression Rating Scale (HDRS) - early morning insomnia indicator

Score for the participant/subject's difficulty, if any, with insomnia in the early morning hours, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C21867 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task reverse baseline score

Total number correct in reverse baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59104 Genetic study data type category

Category of data type expected for the genetics study

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C16198 Biological sample in repository consent form signed indicator

Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C20087 Mitochondrial disease prior vomit onset trigger type

Type of trigger present at symptom onset of the participant's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59735 Calcium supplement indicator

Indicator of whether the participant is taking a calcium supplement

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20219 Mitochondrial disease alternative medicine treat GI problem indicator

Indicator of whether the participant has tried to treat GI problems with alternative medicine

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20047 Mitochondrial disease prior special diet type other text

The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16173 Pregnancy estimate delivery date and time

The date and time (if applicable) the participant is estimated to deliver the pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 901 - 925 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.