CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3133-C59080	C59080	Biological sample in repository specimen type other text	The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04508	C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60280	C60280	Mitochondrial disease prior vomit fail stop text	The free-text field related to the participant's previous efforts that failed to stop vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20081	C20081	Mitochondrial disease prior vomit green yellow frequency type	Type of frequency with which the participant's vomit was green or yellow in prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59729	C59729	Medication denosumab indicator	Indicator of whether the participant is or has ever taken denosumab (Prolia)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20213	C20213	Mitochondrial disease bowel movement problem detail text	The free-text field to specify additional details about the participant's bowel movement problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20039	C20039	Mitochondrial disease infant formula text	The free-text field to specify the kind of infant formula used by participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16165	C16165	Hormonal therapy stop date/time	The date and time (if applicable and known) the participant stopped hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09374	C09374	Hamilton Depression Rating Scale (HDRS) - retardation indicator	Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21881	C21881	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task test type	Type of experimental task, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59114	C59114	Genetic study data sample category type	Type of sample category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20089	C20089	Mitochondrial disease prior vomit detail text	The free-text field to specify additional details about participant's past vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59737	C59737	Bone fracture count	Count of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20221	C20221	Mitochondrial disease alternative medicine type other text	The free text field related to 'Mitochondrial disease alternative medicine type' specifying other text. Type of alternative medications that the participant has tried	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20049	C20049	Mitochondrial disease current vomit onset age category	Category of the participant's age at the onset of current vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19613	C19613	Length Z score	The number of standard deviations the measured length of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16175	C16175	Menstrual period last date	Date of the participant's last menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20180	C20180	Mitochondrial disease prior abdominal pain trigger type	Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60245	C60245	Biomarker muscle biochemistry assessment type other text	The free-text field related to 'Biomarker muscle biochemistry assessment type', specifying other text. Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59165	C59165	Genotype platform probe count	Count of probes for the genotype platform	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19516	C19516	Blood sample repository name	Name of repository to which the participant gave a blood sample	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20229	C20229	Mitochondrial disease time gastrointestinal symptom occur prior diagnosis text	The free-text field to provide how long participant had GI symptoms before being diagnosed with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20057	C20057	Mitochondrial disease current vomit episode trigger indicator	Indicator of whether there are particular triggers that induce current vomiting episodes in participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19623	C19623	Head circumference percentile value	Value of the participant's head circumference percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.