CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20195	C20195	Mitochondrial disease prior bloat abdominal distension stop age category	Category of the participant's age at the end of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19715	C19715	Dietary supplement generic name	Generic name for the supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C60355	C60355	Lab urine specimen fast prior indicator	Indicator of whether the participant was fasting prior to collection of urine lab specimen	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60271	C60271	Mitochondrial disease DNA deletion text	The free-text field to specify the mitochondrial disease mitochondrial DNA deletion	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20072	C20072	Mitochondrial disease prior vomit symptom consistent indicator	Indicator of whether past vomiting symptoms were consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59720	C59720	Medication oral contraceptive current indicator	Indicator of whether the participant is currently taking oral contraceptives	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20203	C20203	Mitochondrial disease toileting use type	Type of toileting used by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20030	C20030	Mitochondrial disease known genetic diagnosis indicator	Indicator of whether the participant has a known genetically diagnosed mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59696	C59696	Dietary supplement multivitamin or mineral name	Name of the multivitamin or multivitamin/mineral dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09365	C09365	Hamilton Depression Rating Scale (HDRS) - weight loss patient indicator	Score for the amount of weight loss reported by the participant/subject, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21854	C21854	Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text	Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59079	C59079	DNA known variant description text	The free-text field describing the presence or absence of known variant(s) in participant's DNA	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60279	C60279	Mitochondrial disease vomit characteristic type	Type of characteristics the participant experiences when vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20080	C20080	Mitochondrial disease prior vomit green yellow indicator	Indicator of whether the participant's past vomit was green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59728	C59728	Medication teriparatide indicator	Indicator of whether the participant is or has ever taken teriparatide (Forteo)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20212	C20212	Mitochondrial disease bowel movement treatment efficacy text	The free-text field to specify about participant's treatments helping or worsening bowel movement problem	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20038	C20038	Mitochondrial disease eat type	Type of ways that participant eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09373	C09373	Hamilton Depression Rating Scale (HDRS) - work activities difficulty indicator	Score for the participant/subject's difficulty, if any, with work and activities, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21878	C21878	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score	Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59112	C59112	Genetic study data general category type	Type of general category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54629	C54629	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score	Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60286	C60286	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn season variation text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom seasonal variation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.