CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60293	C60293	Mitochondrial disease swallow pain indicator	Indicator of whether the participant has pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20094	C20094	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status	Status of whether the participant's GERD, heartburn, mid-line chest pain, esophageal burning symptoms are current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12931	C12931	Cardiovascular Holter exam premature ventricular contraction percentage value	Value of the percent of premature ventricular contractions the participant experienced during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56425	C56425	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value	The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F1056-C10602	C10602	Cardiac MRI ejection fraction measurement	Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60140	C60140	Dual X-ray absorptiometry R3 lateral distal femur bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60100	C60100	Imaging pre-existing hardware anatomic site	Anatomic site of the hardware implanted or attached prior to an imaging scan	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20147	C20147	Mitochondrial disease swallow pain text	The free-text field to specify comments about participant's pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60350	C60350	Sleep total average duration	Duration of total average sleep during the recording period	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19556	C19556	Biomarker cerebrospinal fluid assessment type	Type of biomarker assessed from cerebrospinal fluid (CSF) samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60301	C60301	Mitochondrial disease early satiety indicator	Indicator of whether the participant experiences early satiety	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20103	C20103	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop text	The free-text field to specify what stopped participant's past GERD heartburn mid-line chest pain esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17954	C17954	Cardiovascular Holter exam atrial dysrhythmia episode duration	Duration, in seconds, of the atrial dysrhythmia episode	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56434	C56434	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score	The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F1056-C12844	C12844	Cardiac MRI ventricle end systolic volume index measurement	Measurement of the selected ventricle's end systolic volume divided by the participant's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F0803-C09590	C09590	Brief Psychiatric Rating Scale (BPRS) - somatic concern score	The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60108	C60108	Dual X-ray absorptiometry lumbar spine bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20156	C20156	Mitochondrial disease current abdominal pain reason	Reason describing the current indication that the participant is experiencing abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60309	C60309	Mitochondrial disease drool indicator	Indicator of whether the participant drools	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20111	C20111	Mitochondrial disease current oral regurgitation symptom consistent indicator	Indicator of whether current symptoms of oral regurgitation are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56444	C56444	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score	The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.