CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20144	C20144	Mitochondrial disease swallow problem detail text	The free-text field to specify additional details about participant's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19549	C19549	Biomarker source assessment type	Type of source obtained to assess the biomarker	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60298	C60298	Mitochondrial disease swallow pain change status	Status related to the change in the participant's current pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20099	C20099	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn wake indicator	Indicator of whether current GERD, heartburn, mid-line chest pain, esophageal burning wakes the participant from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56430	C56430	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value	The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60108	C60108	Dual X-ray absorptiometry lumbar spine bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20152	C20152	Mitochondrial disease esophagus diagnosis ever type	Type of esophageal disorder with which the participant has ever been diagnosed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19567	C19567	Biomarker muscle histology assessment type	Type of biomarker(s) assessed from muscle histology	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60306	C60306	Mitochondrial disease tired eat indicator	Indicator of whether the participant gets tired when eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20108	C20108	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn detail text	The free-text field to specify additional details about participant's past GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56439	C56439	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60116	C60116	Dual X-ray absorptiometry total hip bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the total hip	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3095-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20161	C20161	Mitochondrial disease current abdominal pain duration type	Type of duration of the participant's current abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60226	C60226	Organoid type other text	The free-text field related to 'Organoid type', specifying other text. Type of organoid	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60314	C60314	Mitochondrial disease swallow center feed therapist indicator	Indicator of whether the participant has been evaluated for a feeding and swallowing center or feeding therapist	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20116	C20116	Mitochondrial disease prior oral regurgitation onset age category	Category of the participant's age at the onset of prior oral regurgitation episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60124	C60124	Dual X-ray absorptiometry distal one-third radius bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60276	C60276	Mitochondrial disease prior special diet type	Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20077	C20077	Mitochondrial disease prior vomit episode trigger indicator	Indicator of whether there were particular triggers that induced prior vomiting episodes in participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.