CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3094-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C57974	C57974	Laboratory procedure random glucose measurement	Measurement of the amount of glucose in the participant's blood at a random/non-fasting time	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20014	C20014	Growth hormone deficiency diagnosis indicator	The indicator related to being diagnosed for deficiency in growth hormone	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60307	C60307	Mitochondrial disease distract eat indicator	Indicator of whether the participant is distracted while eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20075	C20075	Mitochondrial disease prior vomit episode intensity type	Type of intensity of the participant's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60114	C60114	Trabecular Bone Score	Score that evaluates pixel gray-level variations in the lumbar spine dual x-ray absorptiometry (DXA) image, providing an indirect measure of bone microarchitecture	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60262	C60262	Genetic study data sample category type other text	The free-text field related to 'Genetic study data sample category type', specifying other text. Type of tissue studied	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20033	C20033	Mitochondrial disease DNA variant text	The free-text field to specify the mitochondrial disease mitochondrial DNA variant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59703	C59703	Sex steroid deficiency cause type	Type of cause of the participant's sex steroid deficiency	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60315	C60315	Mitochondrial disease swallow center feed therapist recommendation type	Type of recommendation the participant received from the feeding and swallowing center or feeding therapist evaluation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19715	C19715	Dietary supplement generic name	Generic name for the supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20083	C20083	Mitochondrial disease prior vomit color blood category	Category of color of the blood present in participant's vomit during prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60122	C60122	Dual X-ray absorptiometry femoral neck areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19571	C19571	Body mass index category	Categorization of the participant's body mass index	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20042	C20042	Mitochondrial disease current special diet indicator	Indicator of whether the participant is currently on a restricted/specialized diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60323	C60323	Mitochondrial disease pancreatitis episodes occur text	The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59696	C59696	Dietary supplement multivitamin or mineral name	Name of the multivitamin or multivitamin/mineral dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60130	C60130	Dual X-ray absorptiometry ultradistal radius areal bone mineral density z score	Z-score of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the ultradistal radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11109	C11109	Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator	Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20051	C20051	Mitochondrial disease current vomit episode trigger symptom onset type other text	The free-text field related to 'Mitochondrial disease current vomit episode trigger symptom onset type ', specifying other text. Type of triggers the participant may have had when symptoms began for the current vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60331	C60331	Mitochondrial disease pancreas insufficiency indicator	Indicator of whether the participant had pancreatic insufficiency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60247	C60247	Biomarker genetic assessment type other text	The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.