CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3090-C60187	C60187	Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine depletion level measurement	Measurement, as a percentage of rest, of the approximate level of phosphocreatine (PCr) depletion in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C60189	C60189	Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine recovery duration	Duration, in seconds, of phosphocreatine recovery in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C60188	C60188	Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine spectra collect indicator	Indicator of whether phosphocreatine spectra was collected in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20021	C20021	Imaging 31 phosphorus magnetic resonance spectroscopy right leg not scan reason	Free-text field for reason as related to not scanning right leg in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20025	C20025	Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status	Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20024	C20024	Imaging 31 phosphorus magnetic resonance spectroscopy thigh MRI status	The status as related to thigh magnetic resonance imaging (MRI) scan of leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C13977	C13977	Imaging abnormality cortical anatomic site	Anatomic site of the abnormality in the brain cortex	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C19019	C19019	Imaging acquisition type other text	The free-text field related to 'Imaging acquisition type' specifying other text. Type of imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13761	C13761	Imaging acute infarct count	The number of acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13756	C13756	Imaging acute infarct present status	The status of the presence of acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60170	C60170	Imaging acute metabolic crisis indicator	Indicator of whether the imaging study was done during an acute metabolic crisis	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12502	C12502	Imaging anterior commissure change status	Status related to changes in the anterior limb internal capsule observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60071	C60071	Imaging anterior limb internal capsule change status	Status related to changes in the posterior limb internal capsule observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60093	C60093	Imaging arterial spin labeling acquisition type	Type of arterial spin labeling used in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60096	C60096	Imaging arterial spin labeling multiphase type phase count	Count of the number of arterial spin labeling phases in multiphase imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60094	C60094	Imaging arterial spin labeling phase type	Type of arterial spin labeling phase used in imaging	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60091	C60091	Imaging arterial spin labeling scheme type	Type of arterial spin labeling scheme used in imaging	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60092	C60092	Imaging arterial spin labeling scheme type other text	The free-text field related to 'Imaging arterial spin labeling scheme type', specifying other text. Type of Arterial spin labeling scheme used in imaging	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60095	C60095	Imaging arterial spin labeling single phase type delay time	Time period in milliseconds (ms) between labeling 'inversion time' and image acquisition 'post-labeling delay' in arterial spin labeling single phase imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.