CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59887 Vestibular head impulse test overt saccades count

Count of overt saccades encountered during vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59886 Vestibular head impulse test covert saccades count

Count of covert saccades encountered during vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C20289 Urgent care clinic use past year indicator

The indicator of whether the participant has used after-hours or urgent care clinic other than the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20290 Urgent care clinic use past year count

The count of the times the participant used an after-hours or urgent care clinic other than the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20291 Urgent care clinic use hypoglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hypoglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59867 Upward gaze perform indicator

Indicator of whether upward gaze was performed by the participant during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59791 Tympanometry stimulus tone frequency type

Type of frequency of the stimulus tone used in tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59794 Tympanometry peak pressure measurement

Measurement of peak pressure obtained by tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59796 Tympanometry middle ear resonance estimate measurement

Measurement of the estimated middle ear resonance obtained by tympanometry

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59795 Tympanometry gradient measurement

Measurement of the gradient with an ear canal volume correction of 200 decapascals (daPa) obtained by tympanometry

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59792 Tympanometry ear canal volume measurement

Measurement of ear canal volume obtained by tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59793 Tympanometry compensated amplitude measurement

Measurement of compensated amplitude obtained by tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59788 Tympanometry assessment status

Status indicating that tympanometry was not assessed

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60342 Triceps skinfold thickness value

Value of the triceps skinfold (back side middle upper arm) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C60113 Trabecular Bone Score performed indicator

Indicator of whether the Trabecular Bone Score was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60114 Trabecular Bone Score

Score that evaluates pixel gray-level variations in the lumbar spine dual x-ray absorptiometry (DXA) image, providing an indirect measure of bone microarchitecture

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.