CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20090 Mitochondrial disease vomit diagnosis cyclic indicator

Indicator of whether the participant/subject has a cyclic vomiting diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20048 Mitochondrial disease vomit current prior status

The status of whether the participant/subject's vomiting is current or past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20063 Mitochondrial disease vomit color blood category

The category of color of the blood present in participant's/subject's vomit

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20060 Mitochondrial disease vomit bright green yellow indicator

Indicator of whether participant's/subject's vomit is bright green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20061 Mitochondrial disease vomit bright green yellow frequency

The frequency with which the participant's/subject's vomit is green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20062 Mitochondrial disease vomit blood indicator

Indicator of whether participant/subject has ever vomited blood

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease vomit blood clot indicator

Indicator of whether participant's/subject's vomit has blood clots

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20093 Mitochondrial disease vision change aura experience type

The type of vision change or aura experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20203 Mitochondrial disease toilet diaper use type

Select whether the participant/subject uses a toilet or diaper

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time GI symptom occur prior diagnosis text

The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20052 Mitochondrial disease symptom consistent indicator

Indicator of whether symptoms are consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20140 Mitochondrial disease swallow problem onset age category

The category of the participant/subject's age at onset of difficulty or pain with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20141 Mitochondrial disease swallow problem occur liquid solid type

The type of consistency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20142 Mitochondrial disease swallow problem frequency

The frequency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20147 Mitochondrial disease swallow pain text

The free text field to specify comments about participant's/subject's pain with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20145 Mitochondrial disease swallow pain frequency

The frequency with which the participant/subject has pain with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20146 Mitochondrial disease swallow pain disrupt activity wake type

The type of activity or sleep disrupted by the participant/subject's swallowing pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20139 Mitochondrial disease swallow difficult pain type

The type of difficulty or pain experienced by the participant/subject when swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20192 Mitochondrial disease swallow air indicator

Indicator of whether participant/subject are air swallowers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20226 Mitochondrial disease surgery type detail text

The free text field to provide additional details about the type of surgery participant/subject had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20225 Mitochondrial disease surgery type

Select the type of surgery participant/subject had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20224 Mitochondrial disease surgery ever indicator

Indicator of whether the participant/subject has had surgery

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20206 Mitochondrial disease stool blood indicator

Indicator of whether the participant/subject has blood in their stools

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20207 Mitochondrial disease stool blood color category

The category of color of blood in participant's/subject's stool

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20208 Mitochondrial disease stool blood amount result

The result of blood in the stool, as an amount

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.