CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C12850 Cardiac MRI left ventricle non-compaction ratio value

Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C09596 Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score

The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C60114 Trabecular Bone Score

Score that evaluates pixel gray-level variations in the lumbar spine dual x-ray absorptiometry (DXA) image, providing an indirect measure of bone microarchitecture

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60262 Genetic study data sample category type other text

The free-text field related to 'Genetic study data sample category type', specifying other text. Type of tissue studied

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C01522 Height measurement

Measurement of participant's height

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C09363 Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator

Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C21846 Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement

Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59077 Genetic test result participant inform source type

Type of source that informed the participant of the genetic test results

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
C60277 Mitochondrial disease stop diet reason text

The free-text field to specify why the participant stopped their dietary restriction

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20078 Mitochondrial disease prior vomit episode trigger text

The free-text field to specify the participant's past vomiting episode triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59726 Medication bisphosphonate current indicator

Indicator of whether the participant is currently taking any bisphosphonates (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate)

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20209 Mitochondrial disease bowel movement treat medicine indicator

Indicator of whether the participant uses medicine to help with bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20036 Height paternal measurement

Measurement of participant's father's height

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C16008 Birth control indicator

Indicates if participant uses birth control

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C09371 Hamilton Depression Rating Scale (HDRS) - middle night insomnia indicator

Score for the participant/subject's difficulty, if any, with middle-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C21865 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task response type

Type of responses in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C16197 Biological sample in repository location name

The location of the banked biological sample or specimen, if known

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60285 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn relief text

The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom relief

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20086 Mitochondrial disease prior vomit abdominal pain before indicator

Indicator of whether the participant experienced abdominal pain before prior vomiting episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59734 Lactose intolerant indicator

Indicator of whether that the participant is lactose intolerant

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication gastrointestinal problem prior worsen text

The free-text field to specify about which medications made the participant's past GI problems worse

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 526 - 550 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.