CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3120-C59720	C59720	Medication oral contraceptive current indicator	Indicator of whether the participant is currently taking oral contraceptives	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20203	C20203	Mitochondrial disease toileting use type	Type of toileting used by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20030	C20030	Mitochondrial disease known genetic diagnosis indicator	Indicator of whether the participant has a known genetically diagnosed mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59696	C59696	Dietary supplement multivitamin or mineral name	Name of the multivitamin or multivitamin/mineral dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59079	C59079	DNA known variant description text	The free-text field describing the presence or absence of known variant(s) in participant's DNA	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60279	C60279	Mitochondrial disease vomit characteristic type	Type of characteristics the participant experiences when vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20080	C20080	Mitochondrial disease prior vomit green yellow indicator	Indicator of whether the participant's past vomit was green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59728	C59728	Medication teriparatide indicator	Indicator of whether the participant is or has ever taken teriparatide (Forteo)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20212	C20212	Mitochondrial disease bowel movement treatment efficacy text	The free-text field to specify about participant's treatments helping or worsening bowel movement problem	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20038	C20038	Mitochondrial disease eat type	Type of ways that participant eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59112	C59112	Genetic study data general category type	Type of general category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17399	C17399	Global unique identifier number	Number representing the Global Unique ID (GUID) which uniquely identifies a participant	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20088	C20088	Mitochondrial disease prior vomit trigger other text	The free-text field to specify additional details about what triggered the participant's past vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59736	C59736	Vitamin D supplement indicator	Indicator of whether the participant is taking a vitamin D supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20220	C20220	Mitochondrial disease alternative medicine type	Type of alternative medicine tried by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20048	C20048	Mitochondrial disease vomit current prior status	Status of whether the participant's vomiting is current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19608	C19608	Length percentile value	Value of the participant's length percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20179	C20179	Mitochondrial disease prior abdominal pain duration detail text	The free-text field to specify additional details about participant's past abdominal pain duration	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59164	C59164	Genotype platform vendor text	The free-text field to specify the genotype platform vendor	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20136	C20136	Mitochondrial disease prior burp occur specific drink food indicator	Indicator of whether the participant's past burping occurred with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C20002	C20002	ECG right bundle branch block status	Status of patterns of right bundle branch block on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 501 - 525 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.