CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3138-C11925	C11925	Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score	Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59951	C59951	Oxygen uptake heart rate submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of (1) the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59911	C59911	Respiration oxygen uptake peak measure rate	Rate of respiration (RR), in breaths per minute, measured at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12798	C12798	Gene missense nonsense variant point mutation location type	Type of location of the missense/nonsense variant or point mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11933	C11933	Modified Fatigue Impact Scale (MFIS) - total score	Total MFIS score (range: 0-84)	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59959	C59959	Oxygen ventilatory equivalent submaximal absolute trial value	Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12908	C12908	Echocardiogram intracardiac find type	Type of intracardiac findings observed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60046	C60046	Tidal volume body temperature pressure saturate trial recovery start measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56243	C56243	Rest oxygen ventilatory equivalent value	Value of the ventilatory equivalent for oxygen at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60006	C60006	Respiration rate trial start measurement	Measurement, in breaths per minute (br/min), of the respiratory rate at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12806	C12806	Gene protein variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59966	C59966	Carbon dioxide end tidal partial pressure ventilatory anaerobic threshold measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of trabeculations in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60014	C60014	Oxygen uptake unit mass trial other timepoint measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59974	C59974	Blood pressure systolic ventilatory anaerobic threshold measurement	Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10839	C10839	Imaging volume count	The number of volume data sets acquired during the imaging scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59832	C59832	Auditory brainstem response wave form morphology text	Free-text field describing the wave form morphology obtained by auditory brain stem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07091	C07091	Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator	Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C10945	C10945	Imaging voxel volume measurement	Volume of the voxel calculated by multiplying the three size measurements	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60022	C60022	Blood pressure systolic trial other timepoint measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17895	C17895	Genes sequenced with no mutations text	The free-text field about additional genes sequenced with no mutations detected	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.