CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 903
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20023 Imaging phosphorus magnetic resonance spectroscopy not leg assessment other text

The free-text field for other reason as related to not having scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20317 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain assessment result

The result in four chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20123 Mitochondrial disease prior oral regurgitation detail text

The free text field to specify additional details about participant's/subject's past oral regurgitation symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20251 Family history kidney disease severe parent type

The type of the participant's/subject's parent with a history of kidney disease that required dialysis or kidney transplant

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16164 Hormonal therapy start date

The date and time (if applicable and known) the participant/subject started hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19565 Blood Pressure measurement

Blood pressure measurement with systolic measurement over diastolic measurement

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20083 Mitochondrial disease prior vomit color blood category

The category of color of the blood present in participant's/subject's vomit during prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09367 Hamilton Depression Rating Scale (HDRS) - insight indicator

Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C19599 Gene text

The free-text field to specify gene screened in the participant/subject for the disease or disorder

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21858 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score

Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C12474 Imaging field of view measurement description text

The general description of field of view (FOV) or anatomical positioning

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16173 Pregnancy estimated delivery date and time

The date and time (if applicable) the participant/subject is estimated to deliver the pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19582 Tanner stage pubic hair scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20091 Mitochondrial disease migraine history indicator

Indicator of whether participant/subject has a history of migraines

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09375 Hamilton Depression Rating Scale (HDRS) - agitation indicator

Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C19720 Dietary supplement administered count

Numerical number of how many times the supplement was taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C20216 Mitochondrial disease medication other text

The free text field to specify the participant's/subject's other medications

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18813 Imaging lesion found other text

The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found within the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21891 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type

Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20051 Mitochondrial disease present vomit trigger other text

The free text field to specify the other trigger the participant/subject may have had when symptoms began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.