CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20277 Emergency room use past year indicator

The indicator of whether the participant has used the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59860 Cervical vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20314 Imaging two dimensional speckle tracking echocardiography global strain chamber view type

Type of chamber view for global strain as related to the two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20243 Diabetes laboratory diagnosis type

Laboratory indications present at diagnosis of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54280 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus language difference score

Difference score calculated as a subtraction of Language index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C20253 Family history stroke parent type

The type of the participant's parent with a history of stroke

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54248 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C52341 12-item Short Form Health Survey Version 2 (SF-12v2)- Limited work activities physical health scale

Scale for surveyee-reported limited work or activities as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59770 Medication hypoglycemia indicator

Indicator of whether the participant has taken any medication for hypoglycemia

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54256 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Recall Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C52349 12-item Short Form Health Survey Version 2 (SF-12v2) - Interfering social activties physical emotional scale

Scale of interfered normal social activities due to physical and emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54264 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval upper bound value

Confidence interval upper bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C00311 Birth weight report value

Birth weight according to the participant's medical report or reported by the parent or legal guardian

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54272 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory vs. attention difference score

Difference score calculated as a subtraction of Attention index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59861 Cervical vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59748 Participant mother pregnancy diabetes status

Status of diabetes for participant's mother during pregnancy

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20286 911 call hyperglycemia year count

The count of the times that the participant called 911 (or their local equivalent) for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59869 Sinusoidal harmonic acceleration velocity measurement

Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59756 Insulin inject difficult type

Type of difficulty injecting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20023 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason other text

The free text field related to 'Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason', specifying other text. The reason as related to not scanning leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59877 Maximum sway excursion forward position percent value

Value of the percent of maximum sway excursion in a forward position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59764 Medication diabetes SGLT2 inhibitor status

Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60189 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine recovery duration

Duration, in seconds, of phosphocreatine recovery in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
Displaying 401 - 425 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.