CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 351 - 375 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20255	C20255	Family history hypertension parent type	The type of the participant's parent with a history of hypertension	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C08522	C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59885	C59885	Vestibular head impulse test type	Type of vestibular head impulse testing performed	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52343	C52343	12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale	Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C59772	C59772	Hypoglycemia feed change indicator	Indicator of whether any changes in feeding due to hypoglycemia have been made	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54258	C54258	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value	Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59853	C59853	Positional test left status	Status of the participant's eye movement in a static left position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52351	C52351	12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score	Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54266	C54266	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score	Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59861	C59861	Cervical vestibular-evoked myogenic potential P1-N1 amplitude ratio value	Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by cervical vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54274	C54274	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C59750	C59750	Blood glucose test method type	Type of method used to test blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20288	C20288	911 call non-diabetes related past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59758	C59758	Medication diabetes not insulin current former indicator	Indicator of whether the participant is currently taking or has previously taken any diabetes medication other than insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20025	C20025	Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status	Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20296	C20296	Hospital admission past year count	The count of times the participant was admitted to hospital in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20311	C20311	Imaging two dimensional speckle tracking echocardiography left ventricle anatomic site	Anatomic site in the left ventricle measured for strain using two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54252	C54252	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20304	C20304	Hospital admission other diabetes related past year total day count	The total duration, in days, of all of the participant's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20263	C20263	Diabetic ketoacidosis emergency post diagnosis diabetes count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20319	C20319	Imaging two dimensional speckle tracking echocardiography two chamber segmental strain value	Value of segmental strain in the two-chamber view measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20003	C20003	Hypoglycemia diagnosis indicator	The indicator related to having hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20272	C20272	Insulin neutral protamine hagedorn current use status	Status indicating whether the participant currently uses neutral protamine hagedorn (NPH) insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 351 - 375 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.