CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52349 12-item Short Form Health Survey Version 2 (SF-12v2) - Interfering social activties physical emotional scale

Scale of interfered normal social activities due to physical and emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54264 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval upper bound value

Confidence interval upper bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59859 Cervical vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C00311 Birth weight report value

Birth weight according to the participant's medical report or reported by the parent or legal guardian

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54272 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory vs. attention difference score

Difference score calculated as a subtraction of Attention index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59867 Upward gaze perform indicator

Indicator of whether upward gaze was performed by the participant during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59756 Insulin inject difficult type

Type of difficulty injecting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20023 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason other text

The free text field related to 'Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason', specifying other text. The reason as related to not scanning leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C59764 Medication diabetes SGLT2 inhibitor status

Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54250 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60189 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine recovery duration

Duration, in seconds, of phosphocreatine recovery in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20302 Hospital admission hypoglycemia past year total day count

The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20261 Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator

The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20317 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain value

Value of segmental strain in the four chamber view measured by two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C06358 Diabetes mellitus type

Type of diabetes mellitus

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant, in units

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant used the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59748 Participant mother pregnancy diabetes status

Status of diabetes for participant's mother during pregnancy

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20286 911 call hyperglycemia year count

The count of the times that the participant called 911 (or their local equivalent) for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59868 Angular rotation frequency

Frequency of angular rotation used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing (RVT)

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59829 Auditory steady state response threshold measurement

Measurement of the hearing threshold obtained by auditory steady state response (ASSR)

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20244 Diabetes insulin receive diagnosis indicator

The indicator of whether the participant received insulin at the time the diabetes was diagnosed

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 326 - 350 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.