CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C60077 Imaging cavitation anatomic site

Anatomic site of the cavitation found in the imaging study

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C60077 Imaging cavitation anatomic site

Anatomic site of the cavitation found in the imaging study

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Mitochondrial Disease Mitochondrial Disease
C19598 Genetic test tissue other text

The free-text field to specify the type of tissue tested for genetic test

 Core Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60146 Imaging computed tomography number

Number distinguishing the computed tomography (CT) session from other sessions

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C20269 Insulin delivery method last use type

The insulin delivery method used most recently by the participant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20275 Insulin injection daily count

The daily count of insulin injections used by the participant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59745 BMI diabetes diagnosis category

Category of the participant's BMI (body mass index) at the time of diabetes diagnosis

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20283 911 call diabetes past year indicator

The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59753 Insulin neutral protamine hagedorn dose

Dose of neutral protamine hagedorn (NPH) insulin taken by the participant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20020 Imaging 31 phosphorus magnetic resonance spectroscopy leg laterality type

Type as related to leg laterality in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20291 Urgent care clinic use hypoglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59761 Medication diabetes thiazolidinedione status

Status related to the use of thiazolidinedione medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54247 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60186 Imaging 31 phosphorus magnetic resonance spectroscopy exercise protocol type

Type of exercise protocol used for phosphorous magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20299 Hospital admission other diabetes related past year count

The count of the times the participant was admitted to hospital for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20314 Imaging two dimensional speckle tracking echocardiography global strain chamber view type

Type of chamber view for global strain as related to the two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20307 Medical office visit not diabetes related past year count

The count of times that the participant was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20266 Hypoglycemia severe loss consciousness seizure post diabetes diagnosis count

The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the time since they were diagnosed with diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52347 12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score

Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59857 Caloric irrigation preponderance percent value

Value of the percent of preponderance associated with caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52355 12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score

Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.