CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20052	C20052	Mitochondrial disease symptom consistent indicator	Indicator of whether symptoms are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19585	C19585	Genetic test methodology type	Type of genetic methodology used	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12483	C12483	Imaging cortex-polymicrogyria indicator	Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C19803	C19803	Dual X-ray absorptiometry scanner performed indicator	Indicator of DEXA scan performed	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20100	C20100	Mitochondrial disease GI detail text	The free text field to specify additional details about participant's/subject's GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1873-C19725	C19725	Laboratory procedure two hour glucose value	Subject/Participants amount of glucose in the blood 2 hours after a 75-gram glucose drink has been ingested	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20225	C20225	Mitochondrial disease surgery type	Select the type of surgery participant/subject had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20060	C20060	Mitochondrial disease vomit bright green yellow indicator	Indicator of whether participant's/subject's vomit is bright green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19607	C19607	Genetic test mitochondrial DNA variant or mutation quantitative analysis heteroplasmy level type	Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12491	C12491	Imaging ventricle abnormality type	The type of abnormality in the ventricles on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12908	C12908	Echocardiogram intracardiac find type	Type of intracardiac findings observed by echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20010	C20010	Dual X-ray absorptiometry scanner performed text	The free-text field related to DEXA scan performed	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20108	C20108	Mitochondrial disease prior GI detail text	The free text field to specify additional details about participant's/subject's past GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12919	C12919	Cardiovascular Holter exam atrial dysrhythmia type	Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20195	C20195	Mitochondrial disease prior bloat abdominal distension stop age category	The category of the participant/subject's age at cessation of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20029	C20029	Mitochondrial disease diagnosis text	The free-text field specifying the mitochondrial disease diagnosis that is present	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C08238	C08238	Imaging repetition gap value	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F0372-C07094	C07094	Center for Epidemiologic Studies-Depression Scale (CES-D) - good other people indicator	Indicates how often the subject felt like good as other people in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C20001	C20001	ECG left bundle branch block status	Status of left bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20155	C20155	Mitochondrial disease abdominal pain current prior status	Indicate whether participant/subject has/had abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of the trabecular layer being greater than 2:1 or less than 2:1 the thickness of the compact layer as assessed by echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20284	C20284	Diabetes 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19555	C19555	Biomarker Urine Assessment Type	Type of biomarker(s) assessed from urine samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12935	C12935	Cardiovascular Holter exam ventricular contraction morphology type	Morphology of the ventricular dysrhythmia	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.