CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C60051	C60051	Perceived exertion trial recovery start Borg scale	Scale value of perceived exertion (PE) using the Borg Scale at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C57112	C57112	Start exercise time	Time of the start of exercise	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59973	C59973	Blood pressure systolic submaximal absolute trial measurement	Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59831	C59831	Auditory brainstem response wave peak number	Number(s) of the wave peak(s) measured in auditory brainstem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60021	C60021	Blood oxygen saturation trial other timepoint measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59981	C59981	Rate pressure product rest value	Value of the Rate Pressure Product at rest, calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60087	C60087	Imaging post processing analysis method software provided type	Type of software method provided for imaging post processing and analysis	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59168	C59168	Gene whole affect exon deleted duplicated indicator	Indicator of whether the whole gene was affected by exonic deletions/duplications	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C19016	C19016	Imaging metabolite type other text	The free-text field related to 'Imaging metabolite type', specifying other text. Type of metabolite measured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60029	C60029	Carbon dioxide submaximal absolute trial end measurement	Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19592	C19592	Genetic test mitochondrial DNA genome deletion duplication analysis tissue type	Type of tissue tested in the mtDNA genome deletion/duplication analysis test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59989	C59989	Breathlessness submaximal absolute trial Borg scale	Scale value of breathlessness during the Submaximal Absolute Trial using the Borg Scale	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60095	C60095	Imaging arterial spin labeling single phase type delay time	Time period in milliseconds (ms) between labeling 'inversion time' and image acquisition 'post-labeling delay' in arterial spin labeling single phase imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07108	C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60171	C60171	Imaging single-voxel spectroscopy voxel one indicator	Indicator of whether single-voxel spectroscopy imaging was done on voxel 1	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60037	C60037	Blood pressure diastolic submaximal absolute trial end measurement	Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19604	C19604	Genetic test nuclear DNA experimental validation type	Type of experimental validation used for the basis of the evaluation of nuclear DNA genetic testing clinical category	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56189	C56189	Rest respiratory rate	Rate of respiration (RR), in breaths per minute, at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59997	C59997	Leg fatigue submaximal absolute trial complete oxygen uptake peak Borg scale ratio value	Value, as a percentage, of the ratio of the scale value of leg fatigue using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.