CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1834

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1059-C12936	C12936	Cardiovascular Holter exam symptomatic arrhythmia indicator	Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurement of the left atrial antero-posterior dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10743	C10743	Echocardiogram tricuspid valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12864	C12864	Echocardiogram left atrial dimension measurement	Measurement of the left atrial dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12872	C12872	Echocardiogram mitral valve stenosis degree status	Status of the degree of mitral valve stenosis as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12891	C12891	Echocardiogram right ventricle function status	Status of right ventricle function on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12914	C12914	Echocardiogram result status	Status of the global results of the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17959	C17959	Cardiovascular Holter exam longest run tachycardia episode value	Value of the longest run of a tachycardia episode during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10932	C10932	Imaging lesion found indicator	Indicator of whether lesions are found in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C10927	C10927	Imaging inversion time duration	Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 151 - 175 of 1834

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.