CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 26 - 50 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3136-C12467	C12467	Imaging brain magnetic resonance imaging perform multiple status	Status related to whether multiple brain magnetic resonance imaging (MRI) sessions have been performed on the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18777	C18777	ECG heart rhythm result type other text	The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12496	C12496	Imaging cerebellum normality status	Status related to whether the cerebellum appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12798	C12798	Gene missense nonsense variant point mutation location type	Type of location of the missense/nonsense variant or point mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C10931	C10931	Imaging quality technically satisfactory status	Status related to whether the quality of the images was technically satisfactory	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18146	C18146	Laboratory procedure HDL cholesterol measurement	Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episode total count	Count of the total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C10564	C10564	Lab blood specimen fast prior indicator	Indicator of whether the participant was fasting prior to collection of blood lab specimen	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12842	C12842	Cardiac MRI ventricle end diastolic volume index measurement	Measurement of the selected ventricle's end diastolic volume divided by the participant's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04511	C04511	ECG QT interval	Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12468	C12468	Imaging brain magnetic resonance imaging perform multiple count type	Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18778	C18778	ECG ventricular arrhythmia type other text	The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12498	C12498	Imaging T2 white matter status	Status related to whether the white matter appears normal or abnormal on T2 weighted images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C13977	C13977	Imaging abnormality cortical anatomic site	Anatomic site of the abnormality in the brain cortex	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12861	C12861	Cardiac MRI quality result type	Type of quality result of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16193	C16193	Pregnancy outcome date/time	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.