CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59714 Sex steroid deficiency diagnosis indicator

Indicator of whether the participant has been diagnosed with sex steroid deficiency

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C52351 12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score

Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54266 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score

Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60044 Heart trial recovery start rate

Heart rate, in beats per minute (BPM), at the beginning of the trial recovery period

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59694 Tachycardia episode unit of measure

Unit of measure for the episode of tachycardia

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C19615 Genetic test name

The name of the genetic test used

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60159 Imaging hemorrhage anatomic site other text

Free-text field related to the location of hemorrhage

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C60004 Gas exhale volume trial start measurement

Measurement of the volume of gas exhaled (VE) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60274 Mitochondrial disease infant formula recommendation type

Type of recommendation the participant received regarding the infant formula

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59861 Cervical vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59723 Medication other progesterone current indicator

Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C59699 Dietary supplement route type other text

The free-text field related to 'Dietary supplement route type', specifying other type. Type of administration route for the dietary supplement

 Supplemental Dietary Supplements False Mitochondrial Disease Mitochondrial Disease
C54274 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C21860 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task normal baseline score

Total number correct in normal baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59083 Repository contact text

The free-text field to specify the contact information for a biological sample repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60167 Imaging brain atrophy anatomic site

Anatomic site of brain atrophy found in imaging

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C60066 Imaging cortical migration anomaly indicator

Indicator of whether cortical migration anomalies are found within the imaging study

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C60012 Work trial other timepoint measurement

Measurement of work, in watts, generated at the specified timepoint during the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60282 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type other text

The free-text field related to 'Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency with which the participant currently has GERD, heartburn, mid-line chest pain, esophageal burning

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59869 Sinusoidal harmonic acceleration velocity measurement

Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59731 Primary nutrition intake source type

Type of the participant's primary source of nutritional intake

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C59972 Oxygen end tidal partial pressure submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial to PETO2 at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59830 Auditory brainstem response wave peak latency measurement

Measurement of wave peak latency obtained by auditory brain stem response (ABR) testing

 Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54282 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C21893 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) error count

Number of errors in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.