CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59806 Audiometry threshold pure tone air conduction stimulus frequency type

Type of frequency of the stimulus presented for pure tone audiometric threshold air conduction testing

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54258 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value

Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60102 Dual X-ray absorptiometry analysis perform date

Date the dual X-ray absorptiometry (DXA) analysis was performed

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

 Exploratory Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C60303 Mitochondrial disease choke solid indicator

Indicator of whether the participant chokes with solids

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60098 Imaging crusher gradient use indicator

Indicator of whether a crusher gradient was used during imaging acquisition

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C52351 12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score

Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59956 Carbon dioxide ventilatory equivalent oxygen uptake peak predict value

Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60201 Imaging spinal cord atrophy indicator

Indicator of whether spinal cord atrophy is found in the imaging study

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C59814 Audiometry speech awareness threshold measurement

Measurement of the participant's speech awareness threshold obtained by speech audiometry

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54266 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score

Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60110 Dual X-ray absorptiometry lumbar spine areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60258 Organ donation register indicator

Indicator of whether the participant has registered for organ donation

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59709 Blood pressure cuff size value

Size of the blood pressure cuff used to measure the participant's blood pressure

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C59916 Gas exhale volume oxygen uptake peak predict value

Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60311 Mitochondrial disease dysphagia diagnosis type

Type of dysphagia diagnosis the participant received

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59964 Oxygen ventilatory equivalent oxygen uptake peak measure predict ratio value

Value at peak oxygen uptake (VO2), as a percentage, of the ratio of (1) the measured ratio of the volume of gas exhaled (VE) to VO2, to (2) the predicted ratio of VE to VO2

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60209 Imaging spinal cord lesion primary pattern type

Type of spinal cord lesion primary pattern found in the imaging study

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C59822 Otoacoustic emission artifact frequency text

Free-text field listing the frequencies with artifact otoacoustic emissions (OAEs)

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54274 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60118 Dual X-ray absorptiometry total hip areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the total hip

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60266 Genetic test methodology text

The free-text field to specify the test methodology for genetic testing

 Core Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59924 Oxygen uptake unit mass peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 per kilogram to predicted peak VO2 per kilogram

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60183 Imaging metabolite level category

Category of the imaging metabolite levels

 Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) False Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.