CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20104 Mitochondrial disease prior GI symptom consistent day to day indicator

Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy value

Subject/Participant's amount of vitamin D twenty five hydroxy in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time GI symptom occur prior diagnosis text

The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease vomit blood clot indicator

Indicator of whether participant's/subject's vomit has blood clots

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19612 Genetic result type

Type of genetic results

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20112 Mitochondrial disease oral regurgitation frequency

The frequency with which participant/subject has oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20237 Mitochondrial disease Munchausen by proxy syndrome health care professional setting type

Select the setting when confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease vomit symptom consistent indicator

Indicator of whether past symptoms were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19588 Genetic test whole exome sequence analysis tissue type

Type of tissue tested in the whole exome sequence analysis test

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C20120 Mitochondrial disease prior oral regurgitation frequency

The frequency with which participant/subject had oral regurgitation in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20246 Birth premature week early count

The count of weeks early that the participant/subject was born prematurely

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20080 Mitochondrial disease prior vomit bright green yellow indicator

Indicator of whether participant's/subject's past vomit was bright green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19596 Genetic test methylation analysis tissue type

Type of tissue tested in the methylated analysis test for genetics

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C21849 Brief Test of Adult Cognition by Telephone (BTACT) - Median latency time lapse millisecond measurement

Median latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20175 Mitochondrial disease prior abdominal pain anatomic site

Select where participant's/subject's past abdominal pain was located

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20304 Hospital admission other diabetes related past year total day count

The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20135 Mitochondrial disease prior burp reflux abdominal distention accompany type

The type of reflux or abdominal distention that accompanied prior burping episodes for the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20263 Diabetic ketoacidosis emergency post diagnosis diabetes count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the time since their diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19616 Length standard infant use type

Indicate whether WHO or CDC growth charts were used in length Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20183 Mitochondrial disease prior abdominal pain wake indicator

Indicator of whether participant's/subject's prior abdominal pain woke self/child from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20021 Imaging phosphorus magnetic resonance spectroscopy right leg not assessment reason

The free-text field for reason as related to not assessing right leg in phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain assessment result

The result for global strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.