CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60236 Hepatic panel type other text

The free-text field related to 'Hepatic panel type', specifying other text. Type of hepatic panel test performed

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60324 Mitochondrial disease pancreatitis episodes duration text

The free-text field to specify the duration of the participant's pancreatitis episodes occurred

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59889 Time submaximal absolute trial complete elapse minute total count

Count of total elapsed minutes at the conclusion of the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C56434 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 composite score

The subject's Full Scale IQ composite score for all four subtests, converted from his/her Full Scale T score for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C60222 Imaging cauda equina root enhancement anatomic site

Anatomic site where cauda equina root enhancement is found in the imaging study

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C60131 Dual X-ray absorptiometry R1 lateral distal femur bone mineral content value

Absolute value of the amount of bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60353 Pulmonary function test result not applicable status

Status denoting that the results of the pulmonary function test are not applicable because the test was not performed

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C59937 Respiratory exchange ratio submaximal absolute trial value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59795 Tympanometry gradient measurement

Measurement of the gradient with an ear canal volume correction of 200 decapascals (daPa) obtained by tympanometry

 Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60244 Biomarker lymphoblast assessment type other text

The free-text field related to 'Biomarker lymphoblast assessment type', specifying other text. Type of biomarker(s) assessed from lymphoblasts samples

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60332 Mitochondrial disease symptom prompt check pancreatitis text

The free-text field specifying what symptoms prompted the participant's medical team to check for pancreatitis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59897 Work oxygen uptake peak measurement

Measurement of work, in watts, being expended instantaneously when peak oxygen uptake (VO2) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60186 Imaging 31 phosphorus magnetic resonance spectroscopy exercise protocol type

Type of exercise protocol used for phosphorous magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C60292 Mitochondrial disease swallow difficult frequency type other text

The free-text field related to 'Mitochondrial disease swallow difficult frequency type', specifying other text. Type of frequency with which the participant has difficulty swallowing

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60087 Imaging post processing analysis method software provided type

Type of software method provided for imaging post processing and analysis

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C56444 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score

The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C59841 Ocular motor assessment horizontal status

Status of the participant's horizontal eye movement during ocular motor assessment

 Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52353 12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score

Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60032 Gas exhale volume submaximal absolute trial end measurement

Measurement of the volume of gas exhaled (VE) at the conclusion of the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C60147 Imaging scanner acquisition mode type

Mode type of image acquisition used for computed tomography imaging

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C59992 Breathlessness submaximal absolute trial complete oxygen uptake peak Borg scale ratio value

Value, as a percentage, of the ratio of the scale value of breathlessness using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59849 Positional test head left status

Status of the participant's eye movement in a head left facing position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.