CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 903
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20195 Mitochondrial disease prior bloat abdominal distension stop age category

The category of the participant/subject's age at cessation of prior abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20029 Mitochondrial disease diagnosis text

The free-text field specifying the mitochondrial disease diagnosis that is present

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20001 ECG left bundle branch block status

Status of left bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20155 Mitochondrial disease abdominal pain current prior status

Indicate whether participant/subject has/had abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20284 Diabetes 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19555 Biomarker Urine Assessment Type

Type of biomarker(s) assessed from urine samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20117 Mitochondrial disease age prior oral regurgitation stop age category

The category of participant/subject's age at end of prior oral regurgitation episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20243 Diabetes laboratory diagnosis type

Laboratory indications present at diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20330 Mitochondrial disease special diet reason text

The free text field to specify why the participant/subject is on a specialized diet

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20077 Mitochondrial disease prior vomit episode trigger indicator

Indicator of whether there were particular triggers that induced prior vomiting episodes in participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19593 Genetic test mitochondrial DNA content analysis tissue type

Type of tissue tested in the mtDNA content analysis test

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C21840 Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test category

Category of responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20125 Mitochondrial disease current burp onset age category

The category of participant/subject's age at onset of current burping episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20253 Family history stroke parent type

The type of the participant's/subject's parent with a history of stroke

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19572 Height pediatric measurement

Measurement of pediatric participant's/subject's height

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20085 Mitochondrial disease prior stool black indicator

Indicator of whether participant's/subject's stools were black

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19714 Dietary supplement study use indicator

Indicator to whether the participant/subject took dietary supplements before or during the study

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C20210 Mitochondrial disease defecation other treatment text

The free text field to specify about the participant's/subject's use of other treatment to defecate

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C21862 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task other trial score

Total number of other experimental trials correct, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C19608 Length percentile value

The participant/subject's length percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20093 Mitochondrial disease vision change aura experience type

The type of vision change or aura experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication GI problem worsen text

The free text field to specify about what medicines made the participant's/subject's GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C21894 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) last number reached text

Text for last number reached in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20053 Mitochondrial disease vomit frequency

The frequency with which the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19598 Genetic test tissue other text

The free-text field to specify the type of tisue tested for genetic test

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.