CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59958 Carbon dioxide ventilatory equivalent oxygen uptake peak measure predict ratio value

Value at peak oxygen uptake (VO2), as a percentage, of the ratio of (1) the measured ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) to (2) the predicted ratio of VE to VCO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60203 Imaging spine enhancement indicator

Indicator of whether there is enhancement in the spine imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59816 Audiometry speech test score

Score for the speech audiometry test

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60112 Dual X-ray absorptiometry lumbar spine bone mineral apparent density z score

Z-score of the bone mineral apparent density (BMAD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60260 Family history relative tissue specimen name

Name of tissue specimen collected from the participant's family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59711 Temperature measurement anatomic site other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text.

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59918 Gas exhale volume oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured volume of gas exhaled (VE) to the predicted VE

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59776 Allergy text

Free-text field to specify the participant's allergies

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C60225 Organoid type

Type of organoid

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60313 Mitochondrial disease swallow study result type

Type of result the participant's swallowing study revealed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59713 Hospitalization diabetes diagnosis indicator

Indicator of whether the participant was hospitalized at the time the diabetes was diagnosed

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C51670 School name

The name of the school that the subject currently attends, if applicable

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C59724 Medication testosterone HCG current indicator

Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C54275 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C21862 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task other trial score

Total number of other experimental trials correct, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59084 Genetic study type

Type of genetics study conducted

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60168 Imaging eye abnormality other text

Free-text field describing eye abnormalities present in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60067 Imaging cortical migration anomaly anatomic site

Anatomic site of the cortical migration anomalies in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60013 Oxygen uptake trial other timepoint measurement

Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60283 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn meal timing interval

Interval of the timing of the participant's current GERD, heartburn, mid-line chest pain, esophageal burning in relation to meals

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59870 Vestibulo-ocular reflex gain measurement

Measurement of the vestibulo-ocular reflex (VOR) gain (the ratio of eye velocity to chair (head) velocity) captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59732 Primary nutrition intake source other text

Free-text field to specify other type of primacy source of nutritional intake

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59973 Blood pressure systolic submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59831 Auditory brainstem response wave peak number

Number(s) of the wave peak(s) measured in auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.