CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1818-C19568	C19568	Biomarker myotube assessment type	Type of biomarker(s) assessed nfrom myotubes	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19998	C19998	Imaging white matter tract finding type	The finding related to imaging of the white matter tracts	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20174	C20174	Mitochondrial disease prior abdominal pain detail text	The free text field to specify additonal details about participant's/subject's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20303	C20303	Hospital admission hyperglycemia past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20134	C20134	Mitochondrial disease prior burp consistent day to day indicator	Indicator of whether past burping was consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20096	C20096	Mitochondrial disease GI symptom consistent day to day indicator	Indicator of whether symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20221	C20221	Mitochondrial disease alternative medicine treatment other text	The free text field to specify other alternative medicine used to treatment	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20056	C20056	Mitochondrial disease vomit time of day category	The time-of-day category of when the participant/subject usually vomits	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19602	C19602	Genetic test mutation clinical category	The category for the type of mutation in clinical setting	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20006	C20006	Bone fracture indicator	The indicator related to having a bone fracture	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20104	C20104	Mitochondrial disease prior GI symptom consistent day to day indicator	Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1873-C19729	C19729	Laboratory procedure vitamin D twenty five hydroxy value	Subject/Participant's amount of vitamin D twenty five hydroxy in the blood	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20229	C20229	Mitochondrial disease time GI symptom occur prior diagnosis text	The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20064	C20064	Mitochondrial disease vomit blood clot indicator	Indicator of whether participant's/subject's vomit has blood clots	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19612	C19612	Genetic result type	Type of genetic results	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20014	C20014	Growth hormone deficiency diagnosis indicator	The indicator related to being diagnosed for deficiency in growth hormone	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20112	C20112	Mitochondrial disease oral regurgitation frequency	The frequency with which participant/subject has oral regurgitation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20237	C20237	Mitochondrial disease Munchausen by proxy syndrome health care professional setting type	Select the setting when confronted by a health care professional about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21849	C21849	Brief Test of Adult Cognition by Telephone (BTACT) - Median latency time lapse millisecond measurement	Median latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20072	C20072	Mitochondrial disease vomit symptom consistent indicator	Indicator of whether past symptoms were consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1871-C19588	C19588	Genetic test whole exome sequence analysis tissue type	Type of tissue tested in the whole exome sequence analysis test	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19579	C19579	Weight length infant measurement	Weight/Length measurement for infants less than 24 months	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20120	C20120	Mitochondrial disease prior oral regurgitation frequency	The frequency with which participant/subject had oral regurgitation in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20246	C20246	Birth premature week early count	The count of weeks early that the participant/subject was born prematurely	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.