CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59844 Ocular motor assessment spontaneous test eye open status

Status of the participant's spontaneous ocular motor testing with eyes open

Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59771 Medication hypoglycemia type

Type of medication taken for hypoglycemia

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60252 Diagnosis primary clinical mitochondrial disease status

Status of the primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60035 Blood oxygen saturation submaximal absolute trial end measurement

Measurement, as a percentage, of blood oxygen saturation (SpO2) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C54285 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Delayed memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Delayed Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60150 Imaging scanner parameter mA value

Number value of the mA image acquisition parameters used for computed tomography imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59995 Leg fatigue ventilatory anaerobic threshold Borg scale

Scale value of leg fatigue using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C21896 Brief Test of Adult Cognition by Telephone (BTACT) - Time duration

Time duration in seconds, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59852 Positional test right status

Status of the participant's eye movement in a static right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60343 Subscapular skinfold thickness value

Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59712 Post-menopausal cause type other text

The free-text field related to "Post-menopausal cause type", specifying other text. Type of cause or reason for the post-menopausal period in the participant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C60177 Imaging voxel 2 same location indicator

Indicator of whether voxel 2 is in the same location as voxel 1

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60043 Respiratory exchange ratio trial recovery start value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C60158 Imaging hemorrhage lobe anatomic site specify text

Free-text field to specify name of the lobe where the hemorrhage is located

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60003 Heart trial start rate

Heart rate, in beats per minute (BPM), at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60273 Mitochondrial disease infant formula choose reason text

The free-text field to specify the reason an infant formula was chosen

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59860 Cervical vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59722 Medication depo-provera current indicator

Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59698 Dietary supplement dose unit of measure

Unit of measure for the dose of the dietary supplement the participant is taking

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C60166 Imaging brain atrophy status

Status of brain atrophy found in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60011 Work trial other timepoint elapsed time minute count

Count in elapsed minutes of the work trial at which data is collected for the other timepoint

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.