CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3126-C59796	C59796	Tympanometry middle ear resonance estimate measurement	Measurement of the estimated middle ear resonance obtained by tympanometry	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54629	C54629	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score	Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60333	C60333	Mitochondrial disease pancreatitis hospitalize indicator	Indicator of whether the participant was hospitalized for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59898	C59898	Work oxygen uptake peak predict value	Value predicted for instantaneous work, in watts, at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59762	C59762	Medication diabetes GLP-1 agonist status	Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C60187	C60187	Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine depletion level measurement	Measurement, as a percentage of rest, of the approximate level of phosphocreatine (PCr) depletion in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56418	C56418	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid type	The type of visual or hearing aid or aids that the examinee needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60293	C60293	Mitochondrial disease swallow pain indicator	Indicator of whether the participant has pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60088	C60088	Imaging post processing analysis method software provided type other text	The free-text field related to 'Imaging post processing analysis method software provided type', specifying the source providing the software for imaging post processing and analysis	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60140	C60140	Dual X-ray absorptiometry R3 lateral distal femur bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59946	C59946	Heart rate oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured heart rate, in beats per minute (BPM), to the predicted heart rate	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60191	C60191	Imaging brain concurrent magnetic resonance imaging perform indicator	Indicator of whether concurrent brain magnetic resonance imaging (MRI) was performed on the participant	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59804	C59804	Audiometry test location	Location of audiometry test	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60100	C60100	Imaging pre-existing hardware anatomic site	Anatomic site of the hardware implanted or attached prior to an imaging scan	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54249	C54249	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59906	C59906	Tidal volume body temperature pressure saturate ventilatory anaerobic threshold measurement	Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60350	C60350	Sleep total average duration	Duration of total average sleep during the recording period	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56426	C56426	Confidence interval level type	The level of confidence for the confidence interval	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F2731-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60301	C60301	Mitochondrial disease early satiety indicator	Indicator of whether the participant experiences early satiety	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60069	C60069	Imaging striatum normality status	Status related to whether the striatum appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60096	C60096	Imaging arterial spin labeling multiphase type phase count	Count of the number of arterial spin labeling phases in multiphase imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59954	C59954	Carbon dioxide ventilatory equivalent ventilatory anaerobic threshold value	Value of the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.