CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60105 Dual X-ray absorptiometry whole body less head areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the whole body not including the head

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59911 Respiration oxygen uptake peak measure rate

Rate of respiration (RR), in breaths per minute, measured at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60306 Mitochondrial disease tired eat indicator

Indicator of whether the participant gets tired when eating

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56439 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C59959 Oxygen ventilatory equivalent submaximal absolute trial value

Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60204 Imaging enhancement spine level text

Free-text field specifying the spine level(s) with enhancement found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59817 Audiometry speech hearing level measurement

Measurement of hearing level obtained by speech audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60113 Trabecular Bone Score performed indicator

Indicator of whether the Trabecular Bone Score was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60261 Family history relative global unique identifier number

Number representing the Global Unique ID (GUID) of the participant's family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59919 Oxygen uptake submaximal absolute trial unit mass measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60178 Imaging multivoxel spectroscopy indicator

Indicator of whether multivoxel spectroscopy imaging was done

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C59777 Otoscopy anatomic site

Anatomic site of the otoscopy

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60226 Organoid type other text

The free-text field related to 'Organoid type', specifying other text. Type of organoid

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60314 Mitochondrial disease swallow center feed therapist indicator

Indicator of whether the participant has been evaluated for a feeding and swallowing center or feeding therapist

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59743 Genetic test diabetes indicator

Indicator related to whether the participant had genetic testing related to diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60212 Imaging bright spot lesion indicator

Indicator of whether bright spot lesions are present in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59825 Auditory brainstem response stimulus type

Type of stimulus used for auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60121 Dual X-ray absorptiometry femoral neck areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60269 Genetic test mitochondrial DNA clinical evaluation type

Type of basis used for the evaluation of the clinical category of mitochondrial DNA (mtDNA) genetic test

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59927 Oxygen uptake peak measurement

Measurement, in milliliters per minute (mL/min), of peak oxygen uptake (VO2) during the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59785 Otoscopy external auditory canal abnormal type other text

The free-text field related to 'external auditory canal abnormal type', specifying other text. Type of abnormal otoscopy finding for the external auditory canal

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60052 Exercise test date

Date on which the exercise test was performed

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60234 Endocrine test type other text

The free-text field related to 'Endocrine test type', specifying other text. Type of endocrine test performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60322 Mitochondrial disease pancreatitis episode type

Type of pancreatitis episodes experienced by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.