CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3137-C12894	C12894	Echocardiogram right ventricular internal dimension end diastole measurement	Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C19017	C19017	Imaging shimming procedure type other text	The free-text field related to 'Imaging shimming procedure type', specifying other text. Type of shimming procedure (method used prior to the operation of the magnet to eliminate inhomogeneities in its field) performed on the MRS	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10875	C10875	Holter exam minimum heart rate	Minimum heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11109	C11109	Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator	Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C12476	C12476	Imaging other incidental finding indicator	Indicator of whether other incidental findings are found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12926	C12926	Cardiovascular Holter exam premature atrial contraction percentage value	Value of percent of premature atrial contractions the participant experienced during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12938	C12938	Cardiovascular Holter exam global result status	Status of the overall results of the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12850	C12850	Cardiac MRI left ventricle non-compaction ratio value	Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C10932	C10932	Imaging lesion found indicator	Indicator of whether lesions are found in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12909	C12909	Echocardiogram right ventricular systolic pressure measurement	Measurement of right ventricular systolic pressure estimate obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12860	C12860	Cardiac MRI intracardiac finding type	Types of intracardial findings observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12868	C12868	Echocardiogram left ventricular trabeculation ratio indicator	Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.