CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1601 - 1625 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12936 Cardiovascular Holter exam symptomatic arrhythmia indicator

Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C12840 Cardiac MRI ventricle end systolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

 Core Medical History False Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C10745 Echocardiogram early mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C04502 ECG global result type

Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
C16159 Family history relative age at onset value

Age the participant's relative experienced the onset of the disease or disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C13788 Imaging chronic infarct anatomic site

Anatomic site of the chronic infarct(s)

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C12893 Echocardiogram right ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the right ventricle on the echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C12901 Echocardiogram right ventricle end systolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C15901 Height percentile value

Value of the participant's height percentile for age calculated using a standardized growth chart

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C11106 Pulmonary function maximal expiratory pressure (MEP) result value

Value in centimeters of water (cm H2O) of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's weight

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C12228 Tissue specimen name

Tissue specimen name collected from the participant

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C18825 Dual X-ray absorptiometry scanner use other text

The free-text field related to 'Dual X-ray absorptiometry scanner use type', specifying other text. The type of scanner used for dual X-ray absorptiometry (DXA)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
Displaying 1601 - 1625 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.