CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20148	C20148	Mitochondrial disease food stuck esophagus indicator	Indicator of whether participant's/subject's gets food stuck in their esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20277	C20277	Emergency room use past year indicator	The indicator of whether the participant/subject has used the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19634	C19634	Body mass index pediatric value	Value of the participant/subject's body mass index, calculated from height and weight, age	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F1931-C20196	C20196	Mitochondrial disease prior bloat abdominal distension stop text	The free text field to specify what stopped participant's/subject's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20030	C20030	Mitochondrial disease known genetic diagnosis indicator	Indicator of whether the participant/subject has a known genetically diagnosed mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C20002	C20002	ECG right bundle branch block status	Status of right bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20156	C20156	Mitochondrial disease abdominal pain reason	Select why you think participant/subject experiences abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20285	C20285	Hypoglycemia 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19556	C19556	Biomarker cerebrospinal fluid assessment type	Type of biomarker assessed from CSF samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20204	C20204	Mitochondrial disease bowel movement problem onset age category	The category of the participant/subject's age at onset of bowel movement problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20038	C20038	Mitochondrial disease eat type	Select the type of ways that participant/subject eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19693	C19693	Imaging brainstem finding type	The finding related to imaging of the brainstem	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20164	C20164	Mitochondrial disease abdominal pain trigger detail text	The free text field to specify additional details about participant's/subject's abdominal pain triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20293	C20293	Urgent care clinic use other diabetes related past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19564	C19564	Biomarker muscle biochemistry assessment type	Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19703	C19703	Imaging cerebellum component type	Type of cerebellum component	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20172	C20172	Mitochondrial disease prior abdominal pain stop text	The free text field to specify what stopped participant's/subject's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20301	C20301	Medical office visit past year indicator	The indicator of whether the participant/subject was seen by a health care provider at a medical office in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20132	C20132	Mitochondrial disease prior burp stop age category	The category of participant/subject's age at the end of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20260	C20260	Diabetic ketoacidosis emergency past year indicator	The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20180	C20180	Mitochondrial disease prior abdominal pain trigger type	The type of trigger of the participant's/subject's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20309	C20309	Dietician consult past year count	The count of times that the participant/subject consulted a dietician in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20312	C20312	Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result	The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20140	C20140	Mitochondrial disease swallow problem onset age category	The category of the participant/subject's age at onset of difficulty or pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.