CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60014 Oxygen uptake unit mass trial other timepoint measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60284 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn trigger text

The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59871 Vestibulo-ocular reflex phase measurement

Measurement of the vestibulo-ocular reflex (VOR) phase captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59733 Consume dairy or substitute indicator

Indicator of whether the participant consumes dairy or dairy substitute products

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59974 Blood pressure systolic ventilatory anaerobic threshold measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59832 Auditory brainstem response wave form morphology text

Free-text field describing the wave form morphology obtained by auditory brain stem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54284 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59794 Tympanometry peak pressure measurement

Measurement of peak pressure obtained by tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60243 Biomarker leukocyte assessment type other text

The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60331 Mitochondrial disease pancreas insufficiency indicator

Indicator of whether the participant had pancreatic insufficiency

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59896 Work ventilatory anaerobic threshold measurement

Measurement of work, in watts, being expended instantaneously when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59760 Medication diabetes sulfonylurea status

Status related to the use of sulfonylurea medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54246 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60185 Muscle group type other text

The free text field related to 'Muscle group type', specifying other text. Type of muscle group

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C60291 Mitochondrial disease swallow difficult frequency type

Type of frequency with which the participant has difficulty swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56423 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other used indicator

The indicator relating to whether the examinee used his/her other visual or hearing aid during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60138 Dual X-ray absorptiometry R2 lateral distal femur areal bone mineral density z score

Z-score of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59944 Heart rate oxygen uptake peak predict value

Value predicted, in beats per minute (BPM), of the heart rate for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60064 Imaging diffusion b-value type other text

The free-text field related to 'Imaging diffusion b-value type', specifying other text. Type of diffusion b-value used for the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59802 Audiometry threshold pure tone assessment status

Status indicating that pure tone audiometric thresholds were not assessed

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19253 Imaging pre-existing hardware surgery indicator

Indicator for pre-existing hardware or surgery

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60339 Mitochondrial disease fecal elastase test result status

Status to the participant's fecal elastase test result status

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59904 Speed submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the speed (in revolutions per minute, RPM) during the Submaximal Absolute Trial to the instantaneous speed (in RPM) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60348 Vigorous activity average duration

Duration of average time the participant spent in vigorous activity

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60299 Mitochondrial disease good appetite indicator

Indicator of whether the participant has a good appetite

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.