CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1451 - 1475 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09369 Hamilton Depression Rating Scale (HDRS) - suicide indicator

Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C10578 Imaging label pulse duration

Duration in milliseconds of the labeling pulse in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C07091 Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator

Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

 Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) False Mitochondrial Disease Mitochondrial Disease
C07099 Center for Epidemiologic Studies-Depression Scale (CES-D) - life failure indicator

Indicates how often the subject felt that life had been a failure in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Mitochondrial Disease Mitochondrial Disease
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C07106 Center for Epidemiologic Studies-Depression Scale (CES-D) - enjoy life indicator

Indicates how often the subject felt like he/she enjoyed life in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C15910 Assessment date and time

The date of participant's injury

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C09603 Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score

The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C10874 Holter exam maximum heart rate

Maximum heart rate measured during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C09347 Hamilton Anxiety Rating Scale (HAM-A) - intellectual score

The score of the participant's/subject's intellectual trouble, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C09355 Hamilton Anxiety Rating Scale (HAM-A) - genitourinary symptom score

The score of the participant's/subject's genitourinary symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C09362 Hamilton Depression Rating Scale (HDRS) - general somatic symptoms indicator

Score for the intensity of the participant/subject's general somatic symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C12505 Imaging eye abnormality indicator

Indicator of whether eye abnormalities are present

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
Displaying 1451 - 1475 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.