CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20074	C20074	Mitochondrial disease vomit time period frequency other text	The free text field to specify how often the participant/subject vomited in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1871-C19590	C19590	Genetic test mitochondrial DNA panel tissue type	Type of tissue tested in the mtDNA panel test	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20122	C20122	Mitochondrial disease prior oral regurgitation occurrence timing type	The type of timing of the participant/subject's prior episodes of oral regurgitation with respect to meals	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20250	C20250	Diabetes family history medical condition indicator	Indicator of whether a close family member of the participant/subject has had a history of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20082	C20082	Mitochondiral disease prior vomit blood indicator	Indicator of whether participant/subject had ever vomited blood	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1871-C19598	C19598	Genetic test tissue other text	The free-text field to specify the type of tisue tested for genetic test	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21856	C21856	Brief Test of Adult Cognition by Telephone (BTACT) - Series complete total number score	Score of total number of items/series completed correctly in the Number Series Task, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20258	C20258	Medication reduce blood sugar prior diagnosis name	The name of the medication to reduce blood sugar levels taken by the particpant/subject prior to diagnosis of the condition/disorder	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19581	C19581	BMI Percentile Value	The participant's/subject's BMI percentile for children over 2 years	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20090	C20090	Mitochondrial disease vomit diagnosis cyclic indicator	Indicator of whether the participant/subject has a cyclic vomiting diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1872-C19719	C19719	Dietary supplement dose value	Strength of the dietary supplement the participant/subject is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20215	C20215	Mitochondrial disease current medication type	Select other medicines that participant/subject are currently taking	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21881	C21881	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task test type	Type of experimental task, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20050	C20050	Mitochondrial disease current vomit episode trigger present symptom onset type	The type triggers participant/subject may have had when symptoms began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19999	C19999	Imaging white matter tract type	The type related to imaging of the white matter tracts	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20098	C20098	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1873-C19723	C19723	Laboratory procedure anti-pancreatic autoantibodies value	Subject/Participant's amount of anti-pancreatic autoantibodies in the blood	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20223	C20223	Mitochondrial disease alternative medicine treatment worsen GI problem text	The free text field to specify about what alternative medicine treatments made the participant's/subject's GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20058	C20058	Mitochondrial disease vomit episode trigger text	The free text field to specify the participant's/subject's vomiting episode triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19604	C19604	Genetic test experimental validation type	Type of experimental validation for the basis of the evaluation	Exploratory	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20274	C20274	Insulin miss dose past two week count	The count of insulin doses missed by the particpant/subject in the past two weeks	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19631	C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F1931-C20193	C20193	Mitochondrial disease bloat abdominal distension text	The free text field to specify additional details about the participant's/subject's abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.