CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3130-C60076	C60076	Imaging cavitation indicator	Indicator of whether cavitation is found in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59741	C59741	Bone fracture age value	Value for participant's age at the time of fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59982	C59982	Rate pressure product submaximal absolute trial value	Value of the Rate Pressure Product at the conclusion of the Submaximal Absolute Trial, calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59839	C59839	Left eye vision status	Status of the participant's vision using the left eye	Supplemental	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59766	C59766	Medication diabetes combination status	Status related to the use of combination medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60030	C60030	Respiratory exchange ratio submaximal absolute trial end value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19595	C19595	Genetic test karyotype tissue type	Type of tissue tested in the karyotype test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59887	C59887	Vestibular head impulse test overt saccades count	Count of overt saccades encountered during vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60145	C60145	Imaging brain computed tomography perform greater than six count	Count specifying the number of brain computed tomography (CT) imaging sessions performed on the participant when greater than six	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59990	C59990	Breathlessness ventilatory anaerobic threshold Borg scale	Scale value of breathlessness using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59847	C59847	Positional test supine status	Status of the participant's eye movement in a supine position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19632	C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59700	C59700	Pregnancy self or contribute sperm status	Status related to whether the participant has ever been pregnant or contributed sperm to a pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59774	C59774	Hypoglycemia cause indicator	Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F3133-C60255	C60255	Diagnosis primary mitochondrial disease support sign status	Status of the sign supportive of primary mitochondrial disease diagnosis	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54260	C54260	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type	Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3131-C60172	C60172	Imaging voxel signal abnormal area indicator	Indicator of whether the voxel is over an area with signal abnormality	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60038	C60038	Perceived exertion submaximal absolute trial end Borg scale	Scale value of perceived exertion (PE) using the Borg Scale at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60153	C60153	Imaging lesion hypodensity anatomic site other text	Free-text field describing the anatomic site of hypodensity	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59998	C59998	Work trial start measurement	Measurement of work, in watts, generated at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59855	C59855	Peak slow-phase eye velocity measurement	Measurement of the peak slow-phase eye velocity (PSEV)	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59717	C59717	Medication steroid inhaler current indicator	Indicator of whether the participant is taking any steroids by inhaler	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52353	C52353	12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score	Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54268	C54268	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score	Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.