CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59084 Genetic study type

Type of genetics study conducted

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60168 Imaging eye abnormality other text

Free-text field describing eye abnormalities present in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60067 Imaging cortical migration anomaly anatomic site

Anatomic site of the cortical migration anomalies in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60013 Oxygen uptake trial other timepoint measurement

Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60283 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn meal timing interval

Interval of the timing of the participant's current GERD, heartburn, mid-line chest pain, esophageal burning in relation to meals

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59870 Vestibulo-ocular reflex gain measurement

Measurement of the vestibulo-ocular reflex (VOR) gain (the ratio of eye velocity to chair (head) velocity) captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59732 Primary nutrition intake source other text

Free-text field to specify other type of primacy source of nutritional intake

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59973 Blood pressure systolic submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59831 Auditory brainstem response wave peak number

Number(s) of the wave peak(s) measured in auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C21894 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) last number reached text

Text for last number reached in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60075 Imaging diffusion-weighted imaging white matter abnormality characteristic specify text

The free-text field to specify the characteristics of the white matter abnormality on diffusion-weighted imaging DWI

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60021 Blood oxygen saturation trial other timepoint measurement

Measurement, as a percentage, of blood oxygen saturation (SpO2) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59878 Maximum sway excursion forward right position percent value

Value of the percent of maximum sway excursion in a forward right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59740 Bone fracture mechanism type

The type of mechanism that caused the participant's fracture(s)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59981 Rate pressure product rest value

Value of the Rate Pressure Product at rest, calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60086 Imaging post processing analysis type

Type of post process analysis method used in imaging

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59838 Vision abnormal specify text

Free-text field to describe the vision abnormality

Supplemental Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C60248 Biomarker specimen other source text

Free-text field specifying the other biomarker(s) assessed from specimen sources

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59765 Medication diabetes other not insulin status

Status related to the use of other medications for diabetes other than insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60083 Imaging brain abnormal enhancement anatomic site

Anatomic site of abnormal enhancement found in brain imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60029 Carbon dioxide submaximal absolute trial end measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59886 Vestibular head impulse test covert saccades count

Count of covert saccades encountered during vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.