CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59835 Electrocochleography result status

Status of the result of the electrocochleography test performed

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C59164 Genotype platform vendor text

The free-text field to specify the genotype platform vendor

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60079 Imaging cortical involve type other text

The free-text field related to "Imaging cortical involve type", specifying other text. The type of cortical involvement observed in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60025 Submaximal absolute trial end minute count

Count of elapsed minutes at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59882 Maximum sway excursion backward left position percent value

Value of the percent of maximum sway excursion in a backward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59751 Insulin basal current use status

Status indicating whether the participant currently uses basal or long acting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60081 Imaging subependymal cyst anatomic site

Anatomic site of the subependymal cysts found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59985 Rate pressure product oxygen uptake peak predict value

Predicted value of the Rate Pressure Product at the attainment of peak oxygen uptake (VO2), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59842 Ocular motor assessment vertical status

Status of the participant's vertical eye movement during ocular motor assessment

Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C59769 Dietician consult count unknown status

Status related to the count of times the participant consulted a dietician is unknown

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60250 Diagnosis primary clinical mitochondrial disease type

Type of primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60033 Tidal volume body temperature pressure saturate submaximal absolute trial end measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59759 Medication diabetes biguanide status

Status related to the use of biguanide medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60148 Imaging scanner pitch value

Number value of the pitch used for computed tomography imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59993 Leg fatigue rest Borg scale

Scale value of leg fatigue at rest using the Borg Scale

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59850 Positional test lateral right status

Status of the participant's eye movement in a lateral right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54623 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value

Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C59703 Sex steroid deficiency cause type

Type of cause of the participant's sex steroid deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C56415 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value

The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60175 Imaging visual spectral quality status

Status related to the assessment of the visual spectral quality

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60041 Oxygen uptake unit mass trial recovery start measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.