CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 101 - 125 of 1834

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60328	C60328	Mitochondrial disease acute pancreatitis indicator	Indicator of whether the participant had acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59893	C59893	Time exclude rest ventilatory anaerobic threshold elapse minute count	Count of total elapsed minutes, excluding rest time, at which the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60288	C60288	Mitochondrial disease swallow difficult indicator	Indicator of whether the participant has difficulty with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59697	C59697	Dietary supplement individual name	Name of the individual dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60135	C60135	Dual X-ray absorptiometry R2 lateral distal femur bone mineral content value	Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20248	C20248	Imaging scanner manufacturer name text	The free-text field related to name of manufacturer of imaging scanner	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19703	C19703	Imaging cerebellum component type	Type of cerebellum component	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59167	C59167	Genotype platform description text	The free-text field describing the genotype platform	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60028	C60028	Oxygen uptake unit mass submaximal absolute trial end measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59885	C59885	Vestibular head impulse test type	Type of vestibular head impulse testing performed	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60143	C60143	Imaging brain computed tomography perform multiple status	Status related to whether multiple brain computed tomography (CT) imaging sessions have been performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60282	C60282	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type other text	The free-text field related to 'Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency with which the participant currently has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59988	C59988	Breathlessness rest Borg scale	Scale value of breathlessness at rest using the Borg Scale	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60239	C60239	Vitamin level test type other text	The free-text field related to 'Vitamin level test type', specifying other text. Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59845	C59845	Ocular motor assessment spontaneous test eye close status	Status of the participant's spontaneous ocular motor testing with eyes close	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59756	C59756	Insulin inject difficult type	Type of difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60253	C60253	Diagnosis primary mitochondrial disease support sign type	Type of sign supportive of primary mitochondrial disease diagnosis	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60170	C60170	Imaging acute metabolic crisis indicator	Indicator of whether the imaging study was done during an acute metabolic crisis	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60036	C60036	Blood pressure systolic submaximal absolute trial end measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60151	C60151	Imaging axial plane slice orientation text	Free-text field describing the axial plane slice orientation (e.g., parallel to the OML, parallel to the hard palate, etc.)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59996	C59996	Leg fatigue oxygen uptake peak measure Borg scale	Scale value of leg fatigue measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59853	C59853	Positional test left status	Status of the participant's eye movement in a static left position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59764	C59764	Medication diabetes SGLT2 inhibitor status	Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C20006	C20006	Bone fracture indicator	The indicator related to having a bone fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 101 - 125 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.