CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59930 Oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 to predicted peak VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59788 Tympanometry assessment status

Status indicating that tympanometry was not assessed

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60055 Participant subjective status trial 2 end text

The free-text field capturing the participant's description of how they felt at the conclusion of the second exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60237 Metabolomic type

Type of metabolic testing performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60325 Mitochondrial disease first pancreatitis episode age value

Value for the participant's age at the first pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59890 Time ventilatory anaerobic threshold elapse minute total count

Count of total elapsed minutes at which the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C21878 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score

Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60071 Imaging anterior limb internal capsule change status

Status related to changes in the posterior limb internal capsule observed in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60017 Heart trial other timepoint rate

Heart rate, in beats per minute (BPM), at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59874 Step acceleration test 60 degree per second time constant value

Value of the time constant for the 60 degree per second step acceleration tested

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59736 Vitamin D supplement indicator

Indicator of whether the participant is taking a vitamin D supplement

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59977 Blood pressure diastolic submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59835 Electrocochleography result status

Status of the result of the electrocochleography test performed

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C21898 Brief Test of Adult Cognition by Telephone (BTACT) - Total repitition count

Total Number of repetitions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59164 Genotype platform vendor text

The free-text field to specify the genotype platform vendor

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60079 Imaging cortical involve type other text

The free-text field related to "Imaging cortical involve type", specifying other text. The type of cortical involvement observed in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60025 Submaximal absolute trial end minute count

Count of elapsed minutes at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59882 Maximum sway excursion backward left position percent value

Value of the percent of maximum sway excursion in a backward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60081 Imaging subependymal cyst anatomic site

Anatomic site of the subependymal cysts found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59985 Rate pressure product oxygen uptake peak predict value

Predicted value of the Rate Pressure Product at the attainment of peak oxygen uptake (VO2), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59842 Ocular motor assessment vertical status

Status of the participant's vertical eye movement during ocular motor assessment

Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C59769 Dietician consult count unknown status

Status related to the count of times the participant consulted a dietician is unknown

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60250 Diagnosis primary clinical mitochondrial disease type

Type of primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C54255 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.