CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 903

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20149	C20149	Mitochondrial disease food stuck esophagus anatomic site	The anatomic site of food getting stuck in the participant/subject's esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20278	C20278	Emergency room use past year count	The count of the times the participant/subject used the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19548	C19548	Biomarker Analysis Indicator	Indicator that a biomarker analysis was performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20533	C20533	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category	Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F1931-C20197	C20197	Mitochondrial disease prior bloat abdominal distension time of day type	The type, as time of day, at which prior abdominal bloating/distension was worse for the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20031	C20031	Mitochondrial disease DNA mutation type	The type of DNA mutation (nuclear or mitochondrial) present in the participant/subject's genetic diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20157	C20157	Mitochondrial disease abdominal pain detail text	The free text field to specify additoinal details about participant's/subject's abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20286	C20286	Hyperglycemia 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19557	C19557	Biomarker fibroblasts assessment type	Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20205	C20205	Mitochondrial disease bowel movement strain pass indicator	Indicator of whether the participant/subject has to strain to pass a bowel movement	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20039	C20039	Mitochondrial disease infant formula text	The free text field to specify the kind of infant formula used by participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19694	C19694	Imaging development malformation corpus callosum type	The type of malformations in development in the corpus callosum (thick band of nerve fibers that divides the cerebrum into left and right hemisphere)	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20165	C20165	Mitochondrial disease abdominal pain disrupt activity indicator	Indicator of whether participant's/subject's abdominal pain disrupts activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20294	C20294	Urgent care clinic use not diabetes related past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19567	C19567	Biomarker muscle histology assessment type	Type of biomarker(s) assessed from muscle histology	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19997	C19997	Imaging deep grey nuclei finding type	The finding related to imaging of the deep grey nuclei	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20173	C20173	Mitochondrial disease prior abdominal pain reason	The reason the participant/subject thinks they or their child experienced prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20302	C20302	Hospital admission hypoglycemia past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20133	C20133	Mitochondrial disease prior burp stopped specific text	The free text field to specify when participant's/subject's past burping stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20261	C20261	Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator	The indicator of whether the participant/subject has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20095	C20095	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burning age category	The category of the participant/subject's age at GERD, heartburn, mid-line chest, pain esophageal burning onset	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20220	C20220	Mitochondrial disease alternative medicine type	Select the alternative medical treatments tried by the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20055	C20055	Mitochondrial disease vomit episode intensity type	The type of intensity of the participant/subject's episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19601	C19601	Genetic test tissue type	Type of tissue tested	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20005	C20005	Hypoglycemia symptom diagnosis text	The free-text field to specify the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 101 - 125 of 903

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.