CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60176 Imaging single-voxel spectroscopy voxel two indicator

Indicator of whether single-voxel spectroscopy imaging was done on voxel 2, if applicable

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60042 Carbon dioxide trial recovery start measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60157 Imaging hemorrhage anatomic site

Anatomic site describing the location of hemorrhage

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60356 Lab specimen urine collection type

Type of collection for the participant's urine specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60002 Respiratory exchange ratio trial start value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60272 Informant questionnaire text

The free-text field specifying the informant for the questionnaire

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59859 Cervical vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59721 Medication estrogen current indicator

Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59822 Otoacoustic emission artifact frequency text

Free-text field listing the frequencies with artifact otoacoustic emissions (OAEs)

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60118 Dual X-ray absorptiometry total hip areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the total hip

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60266 Genetic test methodology text

The free-text field to specify the test methodology for genetic testing

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59924 Oxygen uptake unit mass peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 per kilogram to predicted peak VO2 per kilogram

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60183 Imaging metabolite level category

Category of the imaging metabolite levels

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C59782 Otoscopy pinna abnormal type

Type of abnormal otoscopy finding for the pinna

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60049 Blood pressure systolic trial recovery start measurement

Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60231 EKG type

Type of EKG (electrocardiogram) performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60319 Mitochondrial disease prior abdominal pain trigger type other text

The free-text field related to 'Mitochondrial disease prior abdominal pain trigger type', specifying other text. Type of trigger of the participant's prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C21867 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task reverse baseline score

Total number correct in reverse baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59748 Participant mother pregnancy diabetes status

Status of diabetes for participant's mother during pregnancy

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54618 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index raw score

Raw score of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C19703 Imaging cerebellum component type

Type of cerebellum component

Core Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C56411 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score

The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60217 Imaging normal lumbosacral spine indicator

Indicator whether the lumbosacral spine Magnetic Resonance Imaging (MRI) is normal

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60126 Dual X-ray absorptiometry distal one-third radius areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59932 Carbon dioxide output anaerobic threshold measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.