CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20089 Mitochondrial disease prior vomit detail text

The free-text field to specify additional details about participant's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20221 Mitochondrial disease alternative medicine type other text

The free text field related to 'Mitochondrial disease alternative medicine type' specifying other text. Type of alternative medications that the participant has tried

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20253 Family history stroke parent type

The type of the participant's parent with a history of stroke

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20137 Mitochondrial disease prior burp specific food drink cause text

This free-text field to specify which specific foods or drinks caused participant's past burping

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20302 Hospital admission hypoglycemia past year total day count

The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20096 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn symptom consistent indicator

Indicator of whether current symptoms of GERD, heartburn, mid-line chest pain, esophageal burning are consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20261 Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator

The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20149 Mitochondrial disease food stuck esophagus anatomic site

Anatomic site of food getting stuck in the participant's esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant, in units

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20158 Mitochondrial disease current abdominal pain anatomic site

Anatomic site where participant's current abdominal pain is located

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18701 Imaging modality type other text

The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20113 Mitochondrial disease current oral regurgitation frequency type other text

The free-text field related to 'Mitochondrial disease current oral regurgitation frequency type', specifying other text. Type of frequency with which participant currently has oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant used the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20166 Mitochondrial disease current abdominal pain wake indicator

Indicator of whether current abdominal pain wakes the participant from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20121 Mitochondrial disease prior oral regurgitation frequency type other text

The free-text field related to 'Mitochondrial disease prior oral regurgitation frequency type', specifying other text. Type of frequency with which the participant had prior oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20286 911 call hyperglycemia year count

The count of the times that the participant called 911 (or their local equivalent) for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20174 Mitochondrial disease prior abdominal pain reason detail text

The free-text field to specify additional details about reasons indicating the participant's past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20129 Mitochondrial disease current burp specific food drink cause text

The free-text field to specify which specific foods or drinks cause participant's current burping

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20023 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason other text

The free text field related to 'Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason', specifying other text. The reason as related to not scanning leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease gastrointestinal physician visit count

Count of GI doctors seen by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20058 Mitochondrial disease current vomit episode trigger text

The free-text field to specify the participant's current vomiting episode triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19624 Head circumference Z score

The number of standard deviations the measured head circumference of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
Displaying 901 - 925 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.